LivEDem: Centring The Lived Experience Of Dementia Within Policy, Practice And Community Development

这个来自三个国家（加拿大，德国和英国）的国际团队建议提供一个深入的社会科学研究的跨国计划，该计划将调查痴呆症的生活经历如何有助于社区发展的政策和实践。拟议的研究将使痴呆症患者和无薪护理人员能够影响社区的变化，因为不同国家和地区在COVID之后以及面对其他新兴的全球挑战时重新思考和重组公共空间。我们将通过学习他们参与社区规划和委托的过程和结果，解决痴呆症患者的政治排斥问题。该研究将通过在当地，国家和国际痴呆症患者网络之间建立联系来解决社会孤立问题。从长远来看，我们的目标是通过展示痴呆症患者在社区内所做的社会贡献，重新定义公众对痴呆症的认识和理解。在这样做的过程中，研究将为解决当地社区的不平等和增强复原力提供更广泛的议程，帮助我们了解如何调整和利用公共空间来解决边缘化和社会排斥问题，并将为急需的社区服务和支持的改革提供重要见解。

This international team drawn from three countries (Canada, Germany, and UK) proposes to deliver a transnational programme of in-depth social science research that will investigate how the lived experience of dementia can contribute to the policy and practice of community development. The proposed research will empower people living with dementia and unpaid carers to influence changes being made to their communities as different countries and regions rethink and reorganise public space in the aftermath of COVID and in the face of other emerging global challenges. We will address the political exclusion of people living with dementia by generating learning about the process and outcomes of their engagement in community planning and commissioning. The research will tackle social isolation through forging connections between networks of people with dementia, locally, nationally and internationally. In the longer-term we aim to redefine public awareness and understanding of dementia by demonstrating the social contribution made by people living with dementia within their communities. In so doing, the research will inform a broader agenda for addressing inequities and enhancing resilience in local communities, helping us understand how public space can be adapted and used to address marginalisation and social exclusion and will provide vital insights into the much-needed reform of community-based services and support.