ISCF HDRUK DIH Sprint Exemplar: PED4PED - People with Epilepsy sharing Data for care with Paramedics and the Emergency Department

癫痫是许多慢性疾病（如糖尿病、哮喘、精神健康状况）中的一种，可急性加重，需要紧急护理。当救护车被称为有人有癫痫发作，护理人员没有获得信息，可以告知急性管理：诊断，通常的癫痫发作类型，抢救药物协议，安全的地方或近亲。因此，许多患者被不必要地带到急诊室（艾德）。同样，艾德的工作人员无法访问这些信息，导致不必要的入院，调查和潜在的治疗错误。与护理人员，患者，神经科医生和艾德代表一起，我们已经确定了一个核心数据集，应该提供给护理人员和艾德工作人员。核心数据项保存在神经病学EPR（诊断和管理）、初级保健（处方）、艾德（既往就诊）、救护车（999次呼叫）中。默西郡和柴郡STP已经创建了一个连接NHS合作伙伴的健康信息交换（e-Xchange），并且沿着兰开夏郡和南坎布里亚郡STP已经被授予第二波LHCRE，共享2Care。我们将在e-Xchange和Share 2Care的基础上，与Forcare合作，向护理人员和艾德工作人员提供核心数据，以改善患者和卫生服务的结果。

Epilepsy is one of many chronic diseases (e.g. diabetes, asthma, mental health conditions) that can have acute exacerbations requiring urgent care. When an ambulance is called for someone that has had a seizure, paramedics do not have access to information that can inform acute management: diagnosis, usual seizure type, rescue medication protocol, place of safety or next of kin. As a result many patients are taken to the emergency department (ED) unnecessarily. Similarly, staff in the ED do not have access to this information, resulting in unnecessary admissions, investigations and potential treatment errors.Together with paramedics, patients, neurologists and ED representatives, we have identified a core dataset that should be available to paramedics and ED staff. Core data items are held in the Neurology EPR (diagnosis and management), primary care (prescribing), ED (previous attendances), ambulance (999 calls). Mersey and Cheshire STP have created a health information exchange (e-Xchange) linking the NHS partners, and along with Lancashire and South Cumbria STP has been awarded a second wave LHCRE, Share2Care. We will build on e-Xchange and Share2Care, working with Forcare, to make core data available to paramedics and ED staff, to improve outcomes for patients and the health service.