FAMILY COPING WITH CHILDHOOD ILLNESS--A CONTEXTUAL MODE

要求RCDA支持一项全面的研究计划 探讨儿童慢性疾病对社会和心理健康的影响 儿童、兄弟姐妹和父母的行为发展。童年 疾病被概念化为家庭系统的一种主要扰动， 为研究家庭如何解决持续存在的问题提供了机会， 慢性压力如何影响发育转变，以及如何 由于对时间的要求更高，家庭重新组织角色和关系 和能量。我们会进行四项主要研究：1)发展 长期存在问题的情况和应对策略的测量 患病学龄儿童和青少年及其父母，2)三波 青少年父母应对方式的纵向效度研究 功效，3)兄弟姐妹关系的日记研究，父母 区别对待和社会支持，以及4)日记研究 检查养育慢性病夫妇与健康夫妇的角色压力 孩子。指导这项研究的理论框架是需要 在定义和衡量方面有更大的背景特殊性 压力和应对过程。由一等奖资助的研究申请 行为分析模型，用于识别特定任务和 对患有囊肿症的儿童和青少年有问题的情况 纤维化和最有效的应对努力。相比之下，之前的 研究一直受到使用全球的、定义不清的 构造。这项研究还试图通过转移到 从对个人的研究到对关系的评价 在家庭系统内；家庭成员之间的和谐程度 对问题的感知和应对策略的使用将与 家庭冲突等后果。RCDA将极大地增强我的 作为研究人员的发展，使我获得以下方面的培训：1) 动力系统理论与方法，2)密集观测 技术，以及3)制定和评价预防性干预措施 为患有慢性病的儿童及其家人提供服务。家庭制度是一种 复杂的问题，需要新的模型和数据分析技术来 代表了其相互作用的非线性模式。史密斯博士会建议 我对动力系统理论在拟议日记中的应用 方法：研究方法。科萨罗博士是定性数据收集方法方面的专家 对于儿童，将在这一领域提供监督。柳叶刀糖尿病 研究和培训中心将指导我的设计和 实施针对青少年及其家庭的干预措施； 将有助于调整我的措施以适应他们的人口。其他内容 干预方法的培训将由La Greca博士和 桑德勒。这项研究应该会促进对以下影响的理解 对儿童和家庭的长期压力，除了提供 制定预防性行为干预措施的基础。最后，一个 RCDA将使我能够从 一群杰出的研究人员帮助我成长为一名理论家 研究员。

An RCDA is requested to support a comprehensive research program examining effects of chronic childhood illness on the social and behavioral development of children, siblings, and parents. Childhood illness is conceptualized as a major perturbation of the family system, providing an opportunity to study how families resolve ongoing problems, how developmental transitions are affected by chronic stress, and how families reorganize roles and relationships given greater demands on time and energy. Four major studies will be conducted: 1) development of a measure of problematic situations and coping strategies for chronically- ill school-age and adolescent children and their parents, 2) a three-wave longitudinal validation of the adolescent-parent measure of coping efficacy, 3) a diary study of sibling relationships, parental differential treatment, and social support, and 4) a diary study examining role strain in couples raising a chronically ill vs. healthy child. The theoretical framework guiding this research is the need for greater contextual specificity in the definitions and measurement of stress and coping processes. Studies funded by a FIRST Award apply a behavior-analytic model to identify both the specific tasks and situations that are problematic for children and adolescents with cystic fibrosis and the most effective coping efforts. In contrast, prior research has been limited by the use of global, poorly defined constructs. This research also seeks to advance theory by moving away from the study of individuals toward the evaluation of relationships within family systems; the extent of congruence among family members in perceptions of problems and use of coping strategies will be related to outcomes such as family conflict. An RCDA would greatly enhance my development as a researcher by enabeling me to obtain training in: 1) Dynamical systems theory and methods, 2) Intensive observational techniques, and 3) Development and evaluation of preventive interventions for chronically ill children and their families. The family system is a complex one and will require new models and data analytic techniques to represent its nonlinear pattern of interactions. Dr. Smith will advise me in the application of dynamical systems theory to the proposed diary methods. DR. Corsaro, an expert on qualitative data collection methods with children, will provide supervision in this area. The IU Diabetes Research and Training Center will instruct me in the design and implementation of interventions for adolescents and their families, and will assist in adapting my measures to their population. Additional training in intervention methods will be provided by Drs. La Greca and Sandler. This research should advance understanding of the effects of chronic stress on children and families, in addition to providing the basis for developing preventive behavioral interventions. Finally, an RCDA will enable me to obtain critical training experiences from an eminent group of researchers to facilitate my growth as a theorist and researcher.