CORE--GENESIS/ELSI

研究和教育的伦理，法律的，和社会问题， 人类基因技术的应用是国家的优先事项。 犹他州 人类基因组研究中心进行了一项名为ELSI的计划， 自1991年以来一直从事社会遗传科学（GENESIS）。 这项建议会 通过创建GENESIS/ELSI核心，继续并扩大这一活动 为犹他州人类基因组中心工作。 核心小组将开展五项活动 这将与该中心的其他主要活动相结合。 这些 活动包括：（1）家庭遗传研究指南将 供IRB、研究者和研究受试者在 伦理，法律的，以及遗传学研究中出现的社会问题， 家庭 一个多学科的教师在ELSI问题的经验， 人类基因研究将与以下机构协商制定指导方针： 研究科学家和非专业人士在家庭遗传 条件 该指南将在同行评审期刊上发表。 (2)每年将为两名研究员制定研究金方案。 研究员将从与以下方面有关的广泛学科中征聘： ELSI问题。 研究员将承担各种责任， 研究和教学的机会。 (3)大学研讨会系列 将继续我们的多学科研讨会的校内计划， 领先的国内和国际学者专注于应用 当代基因研究 (4)道德操守论坛将继续 为讨论当代ELSI问题提供机会， 参与遗传学研究的年轻科学家。 (5)公共教育 在人类遗传学的伦理，法律的和社会问题将是 进行。 据建议，第二学院的教员将获得部分 通过GENESIS Core提供资金。 犹他州的ELSI核心将是一个强大的， 关于ELSI问题的长期研究和教育计划， 为参与人类研究的研究者和受试者提供有价值的支持 基因研究

Research and education in the ethical, legal, and social issues in the application of human genetic technology is a national priority. The Utah Center for Human Genome Research has conducted an ELSI program, titled Genetic Science in Society (GENESIS) since 1991. This proposal will continue and expand this activity with the creation of a GENESIS/ELSI Core for the Utah Human Genome Center. The Core will conduct five activities that will be integrated with other key activities of the Center. These activities are: (1) Guidelines for Genetic Research in Families will be prepared for use by IRB's, investigators and research subjects on the ethical, legal, and social issues that arise in genetics research with families. A multidisciplinary faculty with experience in ELSI issues and human genetic research will develop the guidelines in consultation with research scientists and lay individuals in families with hereditary conditions. The guidelines will be published in a peer reviewed journal. (2) A Fellowship Program will be developed for two fellows per year. Fellows will be recruited from a broad range of disciplines relevant to ELSI issues. Fellows will have a variety of responsibilities and opportunities for research and teaching. (3) A University Seminar Series will continue our intramural program of multidisciplinary seminars with leading national and international scholars focusing on the applications of contemporary genetic research. (4) An Ethics Forum will continue to provide an opportunity for the discussion of contemporary ELSI issues by the young scientists involved in genetic research. (5) Public Education in the ethical, legal, and social issues in human genetics will be conducted. It is proposed that II faculty members will receive partial funding through the GENESIS Core. The Utah ELSI core will be a strong, long term program of research and education on ELSI issues that will provide valuable support for investigators and subjects involved in human genetic research.