WORKSHOP: MEASURING HRQOL FOR COMPLEMENTARY MEDICINE

美国、加拿大和欧洲的卫生保健决策者呼吁为补充和替代医学（CAM）的安全性和有效性提供更好的证据。越来越多的人正在使用CAM，但往往没有这方面的证据。可信的研究需要良好的结果衡量标准。本次研讨会的目的是制定在CAM研究中衡量与健康有关的生活质量（HRQOL）的准则。讲习班将讨论对传统医学和补充医学研究人员之间的合作以及适当和基于证据的保健服务一体化至关重要的主要方法问题。与会者将制定一个广泛的研究议程，以刺激和协调未来几年的国家和国际工作，并将通过在一份主要医学杂志上发表报告来传播我们的专家共识结果。研讨会的正式目标是提高补充医学和传统医学研究中HRQOL测量的频率和质量。目标是：1。推荐在CAM和传统医学研究中测量HRQOL最有用的一组工具。2. 确定临床医生和研究人员在补充医学HRQOL测量中的优先问题。3. 明确CAM在通用和特定疾病测量方面的研究需求。4. 指出补充医学和传统医学现有HRQOL措施的优缺点。讲习班的设计是高度互动的，每个模块60-90分钟，由两名参与者组成的小组提供便利，其中一名来自传统医学，另一名来自补充医学。这些会议将由专业人员协助、录音和抄写，然后进行总结以供出版。研讨会将包括来自加拿大、美国和欧洲的20位在HRQOL测量和/或CAM方面的杰出国际专家。研讨会定于2000年5月5日至7日在不列颠哥伦比亚省温哥华举行。

Health care decision- makers in the U.S., Canada and Europe have called for better evidence for the safety and effectiveness of complementary and alternative medicine (CAM). A rapidly growing number of people are using CAM, often without this evidence. Credible research requires good outcome measures. The purpose of this workshop is to develop guidelines for measuring health related quality of life (HRQOL) in CAM research. The workshop will address the major methodological issues central to cooperation between conventional and complementary medicine researchers, and to appropriate and evidence based integration of health services. The conference participants will develop a broad research agenda to stimulate and coordinate national and international work in the coming years and will disseminate our expert consensus findings by publishing the report in a leading medical journal. The formal goal of the workshop is to increase the frequency and quality of HRQOL measurement in complementary and conventional medicine research. The objectives are to: 1. Recommend the most useful group of tools for measuring HRQOL in CAM and conventional medicine research. 2. Identify priority issues in complementary medicine HRQOL measurement for clinicians and researchers. 3. Clarify research needs in CAM for generic and disease specific measurement. 4. Pinpoint strengths and weaknesses of existing HRQOL measures for complementary and conventional medicine. The workshop design is highly interactive, with each 60-90 minute module facilitated by a team of two participants, one from conventional medicine and one from complementary medicine. The sessions will be professionally facilitated, taped and transcribed, and then summarized for publication. The workshop will include 20 outstanding international experts in either HRQOL measurement and/or CAM, from Canada, the U.S. and Europe. The workshop is scheduled for May 5 - 7, 2000 and will be held in Vancouver, British Columbia.