PRENATAL DIAGNOSIS AND THE SELECTION OF CHILDREN

描述(改编自《调查员摘要》)：这个项目的标题是 “产前诊断和儿童选择”将开展一项 全面分析与以下方面有关的道德、法律和社会问题 产前诊断服务的专业标准和公共政策。 基因测试、先进的成像技术和新的获取方法 胎儿和胚胎组织将使产前诊断成为可能 扩展条件列表。对“轻微”健康状况进行产前诊断， 迟发性疾病以及秋季的行为和身体状况 在可预见的未来，在正常范围内是可能的。给定 执行产前诊断的当前和预期能力，医学 职业和更广泛的社会必须决定这些技术应该如何 被利用。具体地说，专业人员应该进行哪些产前诊断测试 提供给未来的父母还是按要求提供？是否应该对 向未来父母提供的测试，或者是否应该是无限的选择， 仅仅受到知情夫妇的个人价值观的限制？这个项目将 对与发展有关的文献进行分析 这项技术应用的专业标准。特例 将关注残疾人社区的文学作品，以及 广泛的医学和生物伦理学文献。主打产品 在这个为期两年的项目中，将有一本名为《透明子宫：产前》的书 《儿童的诊断和生物学选择》。这本书将为 受过教育的外行社区，以及医疗专业和生物伦理学 社区。迫切需要就以下问题达成社会共识： 适当使用产前诊断。这个项目将开发一个明确的 在这方面提出建议，并促进就这些重要问题进行广泛辩论。

DESCRIPTION (Adapted from the Investigator's Abstract): This project titled "Prenatal Diagnosis and the Selection of Children" will undertake a comprehensive analysis of the ethical, legal and social issues relevant to professional standards and public policy for prenatal diagnostic services. Genetic tests, sophisticated imaging technologies and new methods to access fetal and embryonic tissues will make prenatal diagnosis possible for an expanding list of conditions. Prenatal diagnosis for "mild" health conditions, late-onset conditions and for behavioral and physical conditions that fall within the normal range may be possible in the foreseeable future. Given the current and anticipated capabilities to perform prenatal diagnosis, the medical profession, and society more broadly, must decide how these technologies should be used. Specifically, what prenatal diagnostic tests should professionals offer prospective parents or provide upon request? Should there be limits on the tests made available to prospective parents or should choices be unlimited, restricted only by the individual values of informed couples? This project will undertake an analysis of the literature relevant to the development of professional standards for the application of this technology. Particular attention will be paid to literature from the disability community, as well as to the broad range of medical and bioethics literature. The principal product of this two year project will be a book titled "The Transparent Womb: Prenatal Diagnosis and the Biologic Selection of Children." The book will be written for the educated lay community, as well as for the medical profession and bioethics communities. There is an urgent need to develop a social consensus on the appropriate uses of prenatal diagnosis. This project will develop a clear proposal in this regard and foster a broad debate on these important issues.