DYING, DEATH, AND GRIEF--INTERNET PROJECT

医疗保健提供者对临终癌症患者和失去亲人的家庭的需求进行教育，对于同情的姑息治疗是必要的。尽管努力在传统医学和护理课程中纳入死亡教育，但在保健提供者为癌症及其家人临终时的需要做好准备方面仍然存在严重差距。我们建议通过互联网广泛、即时和灵活地获取信息，在姑息医学教育中提供创新的外展计划。在这个项目中，英国领先的互联网和CD-ROM出版商之一剑桥语用学公司将与西北大学罗伯特·H·卢里癌症中心项目的多学科教师合作，开展姑息医学和教育项目。在这一努力中，我们将把Northerwest的姑息治疗课程扩展到国内和国际的医疗保健专业受众。与临床相关的课程将涉及死亡、死亡和丧亲的复杂的医学、心理、社会、宗教、文化和伦理层面。医生、护士、相关医疗提供者和学生将获得以下计划功能：1)指导用户了解该计划的中央指南；2)关于姑息治疗的四个核心模块(姑息治疗；文化、宗教和精神；死亡、死亡和悲伤的心理学；临终决定中的伦理和法律考虑)；3)由临终关怀和姑息医学专家主持的讨论小组；4)指向关于死亡、死亡、悲伤和姑息治疗的其他资源的超文本链接；5)常见问题页面(FAQ)；以及6)可下载的文档(研究报告、简报、参考书目)。我们的项目开发将包括四项研究，以评估课程及其互联网交付。首先，我们将进行一系列关键的线人访谈和焦点小组，以开发和测试该产品的初步版本。在第二个阶段，我们将通过研究网站的日常访问情况来评估网站的使用情况。第三，根据用户特征考察用户对网站的满意度。第四，我们将评估网站持续教育用户在知识和态度方面的变化。

Health care provider education in the needs of the dying cancer patient and the bereaved family is necessary for compassionate palliative care. In spite of efforts to include death education through traditional medical and nursing curriculae, serious gaps remain the preparation of health care providers for the need of cancer and their families at the time of dying. We propose to use the wide, immediate, and flexible access to information possible through the Internet to provide an innovative outreach program in palliative medicine education. In this project, Cambridge Pragmatics, one of the nation's leading Internet and CD-ROM publishers, will collaborate with the multi-disciplinary faculty of the Robert H. Lurie Cancer Center Program in Palliative Medicine and Eduction at Northwestern University. In this effort, we will extend the reach of Northerwestern's curriculum in palliative care to a national and international audience of health care professionals. The clinically relevant curriculum will address the complex medical, psychological, social, religious, cultural, and ethical dimensions of dying, death and bereavement. Physicians, nurses, allied health providers and students will gain access to the following program features: 1) a central guide to orient the user to the program; 2) four core modules on palliative care (palliative care; culture, religion, and spirituality; psychology of death, dying, and grief; ethical and legal considerations in end-of-life decisions); 3) a discussion group moderated by experts in hospice and palliative medicine; 4) hypertext links to other resources on dying, death, grief, and palliative care; 5) a frequently asked question page (FAQ); and 6) downloadable documents (research reports, briefs, bibliographies). Our project development will include four studies to evaluate the curriculum and its Internet delivery. In the first, we will conduct a series of key informant interviews and focus groups to develop and test a preliminary version of the product. In the second, we will evaluate site use through a study of daily visits to the site. In the third, we will examine user satisfaction with the site according to user characteristics. In the fourth, we will evaluate change in knowledge and attitudes among continuing education users of the site.