FAMILY EXPERIENCES WITHDRAWING LIFE SUSTAINING THERAPY

描述对于从急性疾病患者中撤回生命维持治疗的家庭科学知之甚少。本研究的目的是描述这种经历和这种经历的意义，家庭成员从一个家庭中退出生命维持治疗，从一个家庭成员中退出一个意想不到的，危及生命的疾病。使用现象学的视角进行探究，本研究将试图回答以下问题：当亲人意外罹患危及生命的疾病时，家庭成员在退出维持生命治疗的过程中会经历什么？将使用Van Manen（1984）定性研究的现象学方法，这种方法将允许研究者和家庭成员相互承诺描述正在研究的现象。将与家属进行深入的录音访谈，并采用观察技术。当家庭参与生命维持治疗的退出时，将在几天到一周的时间内进行多次访谈和观察。都市医疗中心所有成人重症监护病房均为数据收集点。理论目的抽样将被用来获得家庭成员参与者。家庭成员将被纳入研究，直到达到数据或理论饱和。至少包括20个家庭。所有采访记录和现场记录将被记录。从每一行记录的数据中归纳出意义单位、聚类和类别。将使用Guba和Lincoln（1981）确定定性科学探究方法严谨性的标准。林肯（1981）的结果，以确定定性科学探究的方法论严谨性将被使用。本研究结果将对未来的研究、临床实践和卫生保健政策具有重要意义。

DESCRIPTION Little is known about the science of families withdrawing life sustaining therapy from patients with acute illnesses. The purpose of this study is to describe this experience and the meaning of this experience of family members participating in withdrawing life sustaining therapy from a family from a family member with an unexpected, life threatening illness. Using a phenomenological perspective for inquiry, this study will seek to answer the question: What do family members experience during the process of withdrawal of life sustaining therapy from a loved one with an unexpected, life threatening illness? Van Manen's (1984) phenomenological method of qualitative research will be used This method will allow the researcher and the family members to mutually commit to describing the phenomenon being studied. In depth audiotaped interviews will be conducted with family members and observation techniques will be employed. Multiple interviews and observations will be conducted over a period of days to week as families participate in the withdrawal of life sustaining therapy. All adult critical care units of a metropolitan medical center will be sites for data collection. Theoretical purposive sampling will be used to obtain the family member participants. Family members will be enrolled into the study until data or theory saturation is reached is reached. A minimum of twenty families will be included. All interview transcripts and field notes will be transcribed. Units of meaning, clusters, then categories will be inductively determined from each line of recorded data. Guba and Lincoln's (1981) criteria for determining methodological rigor for qualitative scientific inquiry will be used. The results Lincoln's (1981) for determining methodological rigor of qualitative scientific inquiry will be used. The results of this study will have important implications for future research, clinical practice, and health care policy.