Development and evaluation of a toolkit to improve access and diagnosis of dementia in memory services for British Urdu speaking population

验证研究：在强大的方法和用户参与之后，我们已经开发了ACE III乌尔都语。我们现在的目标是在100名英国乌尔都语使用者中验证ACE-III乌尔都语。我们将从大曼彻斯特地区的记忆诊所招募34名额颞叶痴呆（FTD）患者，33名阿尔茨海默病（AD）患者，沿着33名健康参与者组成对照组。所有参与者将管理乌尔都语ACE-III和他们的分数计算和验证对临床诊断记录的记忆clinics.Implementation Study：开发一个工具包，包括乌尔都语ACE-III和各种资源，将解决问题的记忆诊所提供给英国乌尔都语服务用户的服务。问题和潜在的解决方案将被确定并用于开发工具包，然后将在大曼彻斯特地区的记忆诊所实施和评估：1。a.将与记忆诊所的工作人员举行两次重点小组会议。我们将讨论他们与英国乌尔都语服务用户在记忆诊所，已经出现的问题，解决这些问题的当前协议，以及培训和资源的任何差距和潜在的解决方案的建议互动的经验。我们还将对英国乌尔都语记忆诊所服务用户进行10次半结构化访谈，了解他们从进入记忆诊所到正式出院的用户体验，包括诊断过程。焦点小组和访谈将录音并逐字记录。Transcendence将进行主题分析，以确定障碍和促进因素。这些综合信息将使我们能够为工具包开发材料，其中包括员工培训，文化敏感的指导方针和英国乌尔都语记忆诊所参与者的信息材料。2. B.实施研究我们将在大曼彻斯特地区的2个记忆诊所实施该工具包，并使用痴呆症评估的完成和质量的前后设计来评估其效果。我们还将探讨工作人员和用户对具有文化敏感性的工具包的满意度。潜在结果：1.经验证的心理测量学稳健的神经心理学评估ACE III用于检测英国乌尔都语人群中的痴呆症。一个工具包，通过提供文化上适当的培训和解决方案，解决工作人员和英国乌尔都语记忆服务用户发现的差距。

Validation Study: Following a robust methodology and user involvement we have already developed ACE III Urdu. We will now aim to validate ACE-III Urdu in 100 British Urdu speakers. We will recruit 34 participants with frontotemporal dementia (FTD), 33 with Alzheimer's disease (AD) from memory clinics across the Greater Manchester area, along with 33 healthy participants to form a control group. All participants will be administered the Urdu ACE-III and their scores calculated and validated against clinical diagnosis documented by memory clinics.Implementation Study: To develop a toolkit consisting of the Urdu ACE-III and various resources that will address issues within memory clinics in terms of the service provided to British Urdu speaking service users. Problems and potential solutions will be identified and used to develop the toolkit which will then be implemented and evaluated in memory clinics across the Greater Manchester Area:1. a. Development of the toolkit Two focus groups will be conducted with staff members of memory clinics. We will discuss their experiences interacting with British Urdu speaking service users within memory clinics, issues that have arisen, current protocol for addressing these issues, and any gaps in training and resources and their proposals for potential solutions. We will also conduct ten semi structured interviews of British Urdu speaking memory clinic service users, regarding their user experience from the point of entry into the memory clinic, including the diagnostic process, to their official discharge from the memory clinic. Focus groups and interviews will be audio recorded and transcribed verbatim. Transcriptions will undergo a thematic analysis to identify barriers and facilitators.This combined information will allow us to develop materials for the toolkit that will include staff training, culturally sensitive guidelines and information materials for British Urdu speaking memory clinic attendees. 2. b. Implementation study We will implement this toolkit in 2 memory clinics in the Greater Manchester area and evaluate its effect using a before and after design on completion and quality of dementia assessment. We will also explore staff and user satisfaction with the culturally sensitive toolkit. Potential Outcomes:1. A validated psychometrically robust neuropsychological assessment ACE III for detecting dementia in British Urdu speaking populations.2. A toolkit that addresses gaps identified by staff and British Urdu speaking memory services users by providing culturally appropriate training and solutions.