Managing Selfhood in Dementia: Interrogating the operationalisation of identity work & its relationship with media representations

这个项目的目标是从整体上审视痴呆症传播和媒体表现中的“身份”和“关注”（或痴呆症担忧）的概念。因此，在关键研究问题的指导下，有一个双重焦点：RQ1)如何在与痴呆症患者的沟通中管理身份和自我问题？身份工作的互动成分是什么？RQ2)在当代媒体对痴呆症的报道中，关于记忆、自我和身份之间关系的想法和期望是如何构建的？RQ3)媒体对痴呆症的表述与“痴呆症担忧”之间的关系是什么？性别、年龄和其他特征如何影响这种关系？在方法上，为了解决RQ1，该项目侧重于分析已有的视频数据库，包括家庭背景（专业痴呆症护理之家和家庭痴呆症护理者之家）和记忆诊所的录音。这些数据结合在一起，将允许对“自我”/“身份”如何在关键的痴呆症护理环境中运作进行法医分析。为了探讨RQ2和3，将分析最近媒体对痴呆症的报道，找出反复出现的主题。然后，关于大脑健康/痴呆风险的关键媒体信息的小片段/例子将包括针对18岁以上的大量广泛样本的态度在线问卷的一部分。这将大大增加对痴呆症媒体表现与个人对最令人恐惧的疾病的风险和“关注”观念之间关系的认识。此外，调查问卷将被用作一种招募工具，对不同的受访者（年龄、性别、种族、与痴呆症患者的个人联系）进行抽样调查，以进行后续访谈/焦点小组（n=30），以深入了解当代媒体表现对认知的影响。结果：这种双重关注将对实践中对痴呆症护理的理解以及与媒体表述相关的方式做出重大贡献。研究结果将显示身份和自我是如何在一系列环境中进行沟通管理的。从理论上讲，这将增加关于护理的女权主义文献，并进一步将护理作为主体间实践的概念，而不是社会群体/角色的“属性”。此外，通过分析在新自由主义最健康的框架内关于痴呆症的媒体信息的产生和接收，将对“自我照顾”的概念有进一步的理论贡献。产出：项目的研究结果将通过高质量的学术期刊文章传播，可访问的项目研究结果摘要将发送给参与者和主要利益相关者，如痴呆症慈善机构和卫生和社会护理专业人员。还将开发一个关于在痴呆症患者中保持身份的培训讲习班，并在痴呆症护理人员中进行试点。

The goal of this project is to holistically interrogate the concepts of 'identity' and 'concern' (ordementia worry) within dementia communication and media representation. Thus there is a twofoldfocus, guided by the key research questions:RQ1) How are issues of identity, and self, managed in communication with people living with adementia? What are the interactional components of identity work?RQ2) How are ideas and expectations about the relationship between memory, self and identityconstructed in contemporary media representations of dementia?RQ3) What is the relationship between media representations of dementia and 'dementia worry',and how do gender, age, and other characteristics inform this relationship?Methodologically, to address RQ1, this project focuses on analysis of a pre-existing video-datacorpus, comprising recordings in domestic contexts (specialist dementia care home and the homesof family dementia carers) and a memory clinic. These data, in combination, will allow for forensicanalysis of how 'self'/'identity' are operationalised across key dementia care contexts. To explore RQ2 and 3, recent media coverage of dementia will be analysed for recurring themes.Vignettes/examples of key media messages about brain health/dementia risk then will comprisepart of an attitudinal online questionnaire targeted at a large and broad sample of over 18s. Thiswill substantively add to knowledge about the relationship between dementia mediarepresentation and individuals' perceptions of risk and 'concern' about a most feared disease.Moreover, the questionnaire will be used as a recruitment tool to sample a diversity ofrespondents (in terms of age, gender, ethnicity, personal connection to an individual withdementia) for follow-up interview/focus group (n=30) to gain in-depth insight into the impact ofcontemporary media representation on perception.Outcomes: This two-fold focus will make a significant contribution to understandings of dementiacare in practice, and the way this relates to media representations. Findings will show how identityand self are managed communicatively in a range of contexts. Theoretically, this will add to thefeminist literature on care, and further notions of care as intersubjective practice rather than the'property' of social groups/roles. In addition, by analysing the production and receipt of mediamessages about dementia within the neoliberal healthiest frame, there will be a further theoreticalcontribution to notions of 'self-care'.Outputs: The findings of the project will be disseminated via high quality academic journal articlesand accessible project findings summaries will be sent to participants and key stakeholders such asdementia charities and health and social care professionals. A training workshop on maintaining identity in dementia will also be developed and piloted with dementia carers.