An Examination of the Social Implications of Hypermobility Spectrum Disorder and Hypermobile Ehlers-Danlos Syndrome as New Diagnostic Categories

我提出的研究是对多动性谱系障碍（HSD）和多动性埃勒-丹洛斯综合征（hEDS）诊断的社会学研究。这些诊断分类于2017年引入，描述了与关节过度活动相关的疾病，取代了之前的关节过度活动综合征（JHS）和ehers - danlos综合征3型（EDS 3）分类，两者之间存在相当大的重叠（HMSA 2019）。这样的研究将解决文献中的一个明显空白，因为尽管在过去十年中，生物医学对关节过度活动的关注越来越多（Castori et al. 2017），但还没有对相关疾病的社会方面进行研究。在Bury（1982）、Williams（2000）和Charmaz（2002）等学者的著名著作的基础上，这将有助于医学社会学中慢性健康状况研究的蓬勃发展。这为慢性疾病患者提供了宝贵的发言权，使他们能够以其他方式说出他们的个人经历和护理问题。我的希望是，这可能会挑战现有的可能造成伤害的医疗理念和实践，并引领HSD或hEDS患者改进诊断和支持实践的发展，最终促进更好的患者预后。

My proposed research is a sociological study of the diagnosis of HypermobilitySpectrum Disorders (HSD) and Hypermobile Ehlers-Danlos Syndrome (hEDS). Thesediagnostic classifications were introduced in 2017 and describe conditions related to jointhypermobility, replacing the former classifications of Joint Hypermobility Syndrome (JHS)and Ehlers-Danlos Syndrome Type 3 (EDS 3), between which there were considerableoverlap (HMSA 2019).Such a study will address a glaring gap in the literature, as despite increasedbiomedical attention paid to joint hypermobility in the past decade (Castori et al. 2017),there have been no studies into social aspects of the associated conditions. This willcontribute to a thriving tradition of the study of chronic health conditions within thesociology of medicine, building on notable works by scholars including Bury (1982), Williams(2000) and Charmaz (2002). This grants an invaluable voice to individuals with chronicillnesses, allowing them to speak out about matters of their personal experiences and carein ways that they would otherwise not be able to. My hope is that may challenge existingmedical ideas and practices that have the potential to cause harm, and spearhead thedevelopment of improved diagnostic and support practices for those with HSD or hEDS,ultimately fostering better patient outcomes.