Digital Toolkit for Outcome Measurement in Orthotics

在假肢和矫形术中使用结构化、有效和可靠的结果测量方法在不同的临床环境中有很大的不同。这意味着很难评估临床干预措施，很难引起用户健康行为的改变，最重要的是使患者能够参与到他们的护理工作中来。结果衡量标准可以用于多种目的，从设定以患者为中心的目标到评估生活质量、量化设备/治疗性能以及评估患者对临床服务的满意度。为了有效，它们应该与用户和利益相关者一起制定，以确保它们都是相关的、可理解的和易于使用的。目前，应用了一系列经过验证的和定制的纸质问卷(包括客观和患者报告的结果衡量标准)或特定的功能评估(包括定时步行测试和舒适度/适合度评分)。这种大量的独立评分与临床观察数据结合在一起，往往会导致每个患者的一套复杂的指标，随着时间的推移，这些指标很难解释。通过推荐的工具集(BAPO，ISPO：AMPROM)尝试将实践标准化，但将其整合到常规临床实践中仍然存在挑战使用通用数字平台整合跨多个结果测量收集的数据，使患者和临床医生在最相关的时候更容易访问，并随着时间的推移监控进展。给予患者这种访问权限可促进参与度，并可用于通知和支持行为的改变(如果适当地确定了患者的需求)

The use of structured, valid and reliable outcome measures within prosthetics and orthotics is considerably varied across clinical settings. This means it is difficult to evaluate clinical interventions, elicit health behaviour change in users, and most importantly enable patients to engage in their care Outcome measures can be applied for multiple purposes, from setting patient focused goals to assessing quality of life, quantifying device/treatment performance and evaluating patient satisfaction with a clinical service. To be effective, they should be developed with user and stake-holder input to ensure they are both relevant, understandable and easy to use. Currently a range of validated and bespoke paper questionnaires (including objective and patient reported outcome measures) or specific functional assessments (including timed walk tests and comfort/fit scores) are applied. This multitude of independent scores combined with clinical observation data can often lead to a complex set of metrics for each patient which are not easy to interpret over time. Attempts to standardise the practice exist through recommended tool sets (BAPO, ISPO:AMPROM) yet challenges remain to integration into routine clinical practiceOpportunities exist to integrate the data collected across multiple outcome measures using a common digital platform, making it easier for patients and clinicians to access when it is most relevant and monitor progress over time. Giving patients this access promotes engagement and can be used to inform and support a change in behaviour (if patients needs are appropriately identified)