Exploring the experiences of 'lived ' involved in applied mental health services research: a peer-led study investigating an eme

患者和公众参与（PPI）是许多健康研究资助者的强制性要求[1]。据了解，患者，护理人员和公众可以帮助提高研究质量，相关性，并使其更加平等和道德的核心[2]。然而，我们目前没有确保其最佳运作的结构、程序和组织规范。此外，缺乏对从事研究工作的人的经验的研究，部分原因是他们有精神痛苦/神经多样性的相关生活经验，可以带到项目中，同时也支持通过PPI参与这种知识。在心理健康/应用健康研究的背景下，这种“新兴劳动力”的经验是重要的，以进一步了解这些工人持有“双重身份”，一个中间或“阈”的空间，不适合研究人员，临床医生或专业工作角色。作为一名从事健康研究的自闭症心理健康服务使用者，利用我作为PPI协调员的精神困扰、服务使用和残疾的生活经历，我将利用我独特的职位从同行研究者的角度进行研究，以揭示参与协调员/工作人员从经验透镜工作所面临的挑战、障碍和促进因素，从而帮助改善PPI实践、建设能力、并通过影响研究中的政策和实践来优化对这一“新兴劳动力”的支持。

Patient and Public Involvement (PPI) is mandatory for many health research funders[1]. It is understood that patients, carers, and the public can help improve research quality, relevance, and make it more equal and ethical to those at its heart[2]. However, we do not currently have the structures, processes, and organizational norms to ensure its optimal functioning. Furthermore, there is a lack of research into the experiences of people working in research in part due to having relevant lived experience of mental distress/neurodiversity to bring to projects, whilst also supporting the involvement of this very knowledge through PPI. The experiences of this 'emerging workforce' within the context of mental health/applied health research is important to understand further as these workers hold a 'dual identity', an in-between or 'liminal' space, that does not fit into researcher, clinician or professional work roles. As an autistic mental health service user working in health research using my lived experience of mental distress, service use and disability as a PPI co-ordinator, I will use my unique position to undertake research from a peer researcher perspective in order to bring to light thechallenges, barriers, and facilitators faced by involvement co-ordinators/staff working from an experiential lens,thereby helping to improve PPI practices, build capacity, and optimize the support for this 'emerging workforce' byinfluencing policies and practice within research.