Internet Support for Self-Managing Neuropathic Pain

描述（由申请人提供）：神经性疼痛（NP）对个人、家庭和社会造成巨大损失。NP可能会阻止一个人工作，社交或享受家庭生活，并与抑郁情绪和生活质量差有关。NP的患病率估计在人口的1.5%至7.7%之间。疼痛管理的传统医学方法在治疗NP和“医学化”患者方面取得了有限的成功，将他们置于被动的角色，并有限地强调主动自我管理。最佳护理应该让患者进行自我管理，以便他们能够学习如何识别，避免和帮助管理他们的疼痛;这是一个患者和临床提供者共同努力减少疼痛并改善功能的过程。这一过程需要患者的积极参与以及患者和提供者之间的良好沟通。时间要求几乎没有为期望的患者-提供者合作留下空间，许多患者没有机会在其他地方发展自我管理技能，从而错过了改善患者健康、功能和生活质量的机会。广泛访问，量身定制的干预措施，以促进病人的教育和采用经验健全和理论驱动的行为自我管理技能。互联网是一个很好的工具，帮助人们与NP自我管理他们的条件。然而，现有的以消费者为导向的疼痛管理网站不提供理论驱动的干预，基于实践的定制，或参与互动工具学习新技能，跟踪进展，并与供应商沟通。我们建议开发一个名为ManageNP.com的交互式疼痛自我管理网站，以满足这一未满足的需求。内容和干预组件将通过一个称为概念图的经验过程来开发，其中来自关键利益相关者（NP患者，临床专家和患者倡导者）的输入用于帮助定义程序的内容和干预组件。该网站将提供有关NP的诊断，治疗和管理的临床可靠信息，以清晰和吸引人的方式为消费者撰写。该网站的一个独特功能将是一套自我评估，提供量身定制的动机反馈，沿着自我管理的建议，解决病人的优先事项和问题。目前没有网站提供这种经验得出的自我管理功能的组合，因此将代表NP护理的重大进展。

DESCRIPTION (provided by applicant): Neuropathic pain (NP) exacts a huge toll on the individual, the family, and society. NP may prevent a person from working, socializing, or enjoying a family life and is associated with depressed mood and a poor quality of life. Estimates of the prevalence of NP range between 1.5% and 7.7% of the population. Traditional medical approaches to pain management have shown limited success in treating NP and "medicalize" patients, placing them in a passive role with limited emphasis on active self-management. Optimal care should engage patients in self-management so they can learn how to identify, avoid, and help manage their pain; a process wherein patient and clinical provider work together to reduce pain and improve functioning. The process requires active participation by the patient and good communication between patient and provider. Time demands leave little room for desired patient-provider collaboration, and many patients have no chance to develop self-management skills elsewhere, resulting in missed opportunities to improve the patient's well-being, function, and quality of life. Widely accessible, tailored interventions are needed to facilitate patient education and the adoption of empirically sound and theory driven behavioral self-management skills. The Internet is an excellent vehicle to help people with NP self-manage their condition. However, existing consumer-oriented pain management Websites do not offer theory driven intervention, empirically-based tailoring, or engaging interactive tools for learning new skills, tracking progress, and communicating with providers. We propose developing an interactive pain self-management Website called ManageNP.com to fill this unmet need. The content and intervention components will be developed through an empirical process called Concept Mapping, in which input from key stakeholders (people with NP, clinical experts, and patient advocates) is used to help define the program's content and intervention components. The Website will provide clinically reliable information about diagnosis, treatment, and management of NP, written for consumers in a clear and engaging manner. A unique feature of the site will be a suite of self-assessments that provide tailored motivational feedback, along with self-management recommendations that address patient priorities and problems. No Website currently offers this combination of empirically derived self-management features and thus will represent a significant advance in NP care.