Promoting Self-Care After Lung Transplantation

描述(申请人提供)：与其他器官的接受者相比，肺移植接受者有更多的并发症、更高的死亡率和更高的平均医疗费用。最大限度地让受援者积极参与改善健康结果的战略几乎没有受到关注。该计划提出了一种新颖的干预措施，使用手持、交互式健康技术来促进肺移植受者的自我护理机构和自我护理行为，从而最大限度地发挥受者自身在预防和检测移植后并发症方面的贡献。本项目的目的是：1)开发一个自我护理干预的原型，并评估其功能(人机工程学、人机交互因素和可用性)；2)在一组纵向开放试验中对自我护理干预进行先导测试，以评估干预、自我护理机构和自我护理行为的利用/满意度，并检验它们之间的关系。该项目将为随机对照试验提供试点数据，以评估自我护理干预在促进受者的自我护理机构和自我护理行为方面的有效性，从而降低移植后的发病率、死亡率和卫生资源利用。我的研究计划的最终目的是开发和测试行为干预措施，以促进受者参与降低肺移植后的发病率和死亡率，从而最大限度地提高长期生存的质量，减少医疗保健的利用。我组建了一个指导团队，并制定了一项密集的培训计划，以获得以下方面的专业知识：1)应用概念模型来指导行为和心理社会干预的发展，2)设计和实施移植队列的临床试验，以及3)使用和评估促进健康的互动技术。这些技能将帮助我实现成为一名独立护士科学家的职业目标。

DESCRIPTION (provided by applicant): Lung transplant recipients have more complications, higher mortality, and greater average healthcare charges than recipients of other organs. Strategies to maximize active recipient involvement in improving health outcomes have received little attention. This plan proposes a novel intervention using a hand held, interactive health technology to promote self-care agency and self-care behaviors in lung-transplant recipients, thus maximizing the contribution of recipients themselves in preventing and detecting post-transplant complications. The purposes of this project are to: 1) develop a prototype of the self-care intervention and evaluate its functionality (ergonomics, human-computer interaction factors, and usability), and 2) pilot test the self-care intervention in a one-group, longitudinal, open-trial in order to assess utilization/satisfaction with the intervention, self-care agency, self-care behaviors, and examine the relationships among them. The project will provide pilot data for a randomized controlled trial to evaluate the effectiveness of the self-care intervention in promoting recipients' self-care agency and self-care behaviors, thereby reducing post-transplantation morbidity, mortality, and health-resource utilization. The ultimate aim of my research program is to develop and test behavioral interventions to promote recipient involvement in reducing morbidity and mortality following lung transplantation in order to maximize the quality of long-term survival and reduce health care utilization. I have assembled a mentoring team and developed an intense training plan to gain expertise in: 1) the application of conceptual models to guide the development of behavioral and psychosocial interventions, 2) the design and conduct of clinical trials in transplant cohorts, and 3) using and evaluating interactive technologies for promotion of health. These skills will assist me to achieve my career goal of becoming an independent nurse scientist.