CORE--PATIENT SUPPORT

描述（由申请人提供）： 该核心项目将为圣路易斯的患者提供最先进的临床护理支持。 克里斯托弗儿童医院、托马斯杰斐逊大学医院和科赛尔儿童医院 医院作为玛丽安安德森综合镰状细胞中心的一部分。它还将支持 参与中心间合作临床试验的患者和工作人员。的焦点 这一核心将扩大该中心在宾夕法尼亚州费城的教育作用，和 肯塔基州路易斯维尔患者及其家属将获得全面的镰状细胞相关 中心和核心工作人员提供的医疗、心理和社会服务。核心工作人员将 还为患者及其家属提供创新的镰状细胞相关教育计划， 以及护士和其他医疗保健专业人员。核心工作人员将协调这些活动， 与该中心的新家庭支持计划，过渡计划，家长组， 以及当地和区域社区机构。圣克里斯托弗医院的核心工作人员 医院将与托马斯的临床核心协调并监督这些活动 杰斐逊大学医院和科赛尔儿童医院（路易斯维尔大学）。

DESCRIPTION (provided by applicant): This core project will provide support for state-of-the-art clinical care for patients at St. Christopher's Hospital for Children, Thomas Jefferson University Hospital, and Kosair Children's Hospital as part of the Marian Anderson Comprehensive Sickle Cell Center. It will also support the patients and staff participating in the Inter-Center cooperative clinical trials. The focus of this core will be to expand the educational role of the Center in Philadelphia, PA., and in Louisville, KY. Patients and their families will have access to comprehensive sickle cell-related medical, psychological and social services provided by Center and Core staff. Core staff will also provide innovative sickle cell-related educational programs for patients and their families, and for nurses and other healthcare professionals. Core staff will coordinate these activities in collaboration with the Center's new family support program, transition program, parent group, and local and regional community agencies. Patient Support Core staff at St. Christopher's Hospital will coordinate and supervise these activities with the Clinical Cores at Thomas Jefferson University Hospital and at the Kosair Children's Hospital (University of Louisville).