Core--Clinical

临床核心为248名儿童、青少年和青壮年镰状细胞病(SCD)儿童、青少年和年轻人提供全面护理，这些患者在儿科镰状细胞诊所接受治疗，132名成人患者在大学医院成人诊所接受治疗。患者服务的临床护理部分是一种高质量的、随时可用的医疗和心理社会护理系统，对患者的需求做出反应。我们的多学科方法整合了医学专家、社会工作者、咨询师、心理学家和护士的技能，以满足患者和家庭的需求。该计划中的大多数儿科患者出生在大辛辛那提地区，并通过新生儿筛查计划进行识别。辛辛那提综合镰刀电池 儿童保健中心(CCSCC)继续发挥领导作用，确保对该地区出生的婴儿进行适当和及时的随访。正因为如此，在该地区出生和筛查的婴儿都没有失去后续行动。临床护理部分与初级保健提供者有效合作，强调平稳过渡到成人护理。临床护理部分涉及SCD患者的教育、职业和心理社会方面。此外，临床护理部分用于促进可能使SCD患者受益的临床和基础研究。临床核心的具体目标是1)。为儿童和成人镰状细胞病(SCD)患者提供全面护理；2)为临床和基础科学研究活动维持稳定的患者资源，并建立、维护和充分利用基础设施，为进行临床研究提供资源和支持；3)为住院医生、研究员、医学生、护生和其他保健专业人员提供培训机会；以及4)继续我们与社区和医疗中心的初级保健医生已经建立的合作关系，以 确保所有镰状细胞病患者都能享受到综合计划的好处，无论他们参加的是管理性医疗计划。

The clinical core provides comprehensive care for 248 children, teenagers, and young adults with sickle cell disease (SCD) followed in the pediatric sickle cell clinic and 132 adult patients followed in the adult clinic at University Hospital. The clinical care component of patient services is a system of high quality, readily available medical and psychosocial care that responds to the patient's needs. Our multi-disciplinary approach integrates the skills of medical subspecialists, social workers, counselors, psychologists, and nurses to meet the patient's and family's needs. The majority of the pediatric patients in this program are born in the Greater Cincinnati area and are identified by newborn screening program. The Cincinnati Comprehensive Sickle Cell Center (CCSCC) continues to take a leadership role in insuring appropriate and timely follow-up for infants born in this area. Because of this, no baby born and screened in this area has been lost to follow-up. The clinical care component works effectively with the primary care provider and emphasizes a smooth transition into adult care. The clinical care component addresses educational, vocational and psychosocial aspects of patients with SCD. In addition, the clinical care component serves to promote both clinical and basic research that may benefit patients with SCD. The specific aims of the Clinical Core are 1). to provide comprehensive care to pediatric and adult patients with sickle cell disease (SCD), 2) to maintain a stable resource of patients for clinical and basic science research activities and to build, maintain and fully utilize an infrastructure which will provide the resources and support to conduct clinical research, 3) to provide training opportunities for residents, fellows, medical students, nursing students, as well as other health care professionals, and 4) to continue our already established collaborative relationship with the primary care physicians in the community and in the medical center to ensure that all patients with sickle cell disease receive the benefits of a comprehensive program regardless of the managed care program in which they are enrolled.