Chiari Malformation: State of the Research & New Directions

描述（由申请人提供）：基亚里畸形：国家的研究和新的方向是一个为期两天的专业会议将于2008年11月6日和7日在芝加哥，伊利诺伊州。该活动将汇集该领域的顶级医生和研究人员，以建立关于基亚里畸形的知识现状，讨论基亚里研究的最新进展，并制定研究建议，以推进基亚里畸形的知识和护理状况。为了实现这些目标，会议将包括几个会议，包括审查报告和分组工作组会议：定义和病理生理学，症状和诊断标准，诊断和研究的工程和成像技术，治疗，儿科问题和相关条件。会议记录将发表在同行评审的医学杂志上，并通过基于网络的视频档案提供。会议活动和结果的传播将对美国估计30万名基亚里患者及其家人的经历和结果产生重大、积极的影响。 公共卫生相关性：基亚里畸形是一种严重的神经系统疾病，在美国影响超过30万人9。由于围绕基亚里的定义、根本原因、诊断和治疗的混乱，患者的经历主要是沮丧、困惑和不必要的治疗延误，成功的结果受到不适当的限制。旨在评估当前知识状况并制定具体研究建议的研究会议将对患者体验和结果产生积极影响。

DESCRIPTION (provided by applicant): Chiari Malformation: State of the Research & New Directions is a two day professional conference to be held November 6th & 7th, 2008 in Chicago, Illinois. The event will bring together the top physicians and researchers in the field to establish the current state of knowledge regarding Chiari malformation, discuss recent developments in Chiari research, and develop research recommendations to advance the state of knowledge and care for Chiari malformation. To achieve these objectives, the conference will be comprised of several sessions, including review presentations and breakout working group sessions on: Definition & Pathophysiology, Symptoms & Diagnostic Criteria, Engineering & Imaging Techniques for Diagnosis and Research, Treatment, Pediatric Issues, and Related Conditions. The proceedings of the conference will be published in a peer-reviewed medical journal and made available through a web based video archive. The conference activities and the dissemination of the results will have a significant, positive impact on the experiences and outcomes of the estimated 300,000 Chiari patients in the US and their families. PUBLIC HEALTH RELEVANCE: Chiari malformation is a serious neurological disorder affecting upwards of 300,000 people in the US9. Because of confusion surrounding the definition, underlying cause, diagnosis, and treatment of Chiari, the patient experience is dominated by frustration, confusion, and unnecessary delays in treatment, and successful outcomes are unduly limited. A research conference designed to assess the current state of knowledge and develop specific research recommendations will have a positive effect on patient experiences and outcomes.