Self-Directed Online Training Program for Multicultural Dementia Caregivers

描述（由申请人提供）：痴呆症的患病率不断上升，对家庭护理人员的健康和心理健康造成的后果，少数民族家庭护理人员缺乏民族文化和语言培训计划，以及少数民族社区互联网的日益普及，都强调了少数民族痴呆症护理人员在线培训计划的必要性。为了响应国家老龄化研究所PA-06-049，我们建议开发和测试的可行性和初步有效性的在线自我导向，技能培训干预为中国和西班牙裔成年人提供照顾阿尔茨海默病和相关痴呆症的个人。该项目的总体目标是利用基于互联网的技术开发一种自我导向的培训干预措施，旨在提高护理人员的管理技能，以提高自我效能，我们假设这将导致减少护理人员的负担和情绪困扰;并增加护理人员的自我护理技能，我们假设这将导致整体健康和生活质量的提高。具体而言，第一阶段将开发两个基于互联网的SDL培训项目的原型，一个针对中国护理人员，另一个针对西班牙裔护理人员，以提高护理管理技能和自我护理技能。将进行迭代形成性评价，为设计干预组件的过程提供信息，以确保干预的可用性、内容有效性、动机设计以及民族文化和语言能力。将进行一项随机对照试验，以评估培训干预对护理人员和护理接受者的影响的初步有效性。第一阶段应用的结果将用于开发第二阶段SBIR，在该阶段中，我们将进行一项全面SDL干预的大规模随机试验。I期研究结果将提供确定II期应用所需样本量所需的效应量。SDL培训计划有效性的证据将为少数民族护理人员在线护理人员培训计划的证据基础的发展做出宝贵贡献。第二阶段应用的成功完成将产生一个具有高度商业化潜力的创新的在线护理人员培训服务模式。首先，使用拟议的技术将有助于提供基于能力的培训服务，这些服务可以单独提供，也可以与痴呆症护理人员提供的其他基于支持的服务相结合。其次，所提出的培训模式不仅适用于少数民族照顾者与痴呆症，但也照顾老年人与其他慢性疾病的照顾者。 公共卫生相关性：拟议的第一阶段工作重点是为华裔和西班牙裔痴呆症护理人员制定一个自我指导的技能培训干预计划。这与国家的公共卫生高度相关，不仅因为这些少数民族群体持续缺乏民族文化和语言能力的教育，支持和援助计划，而且因为西班牙裔和亚裔美国人是美国增长最快的两个群体，根据人口普查局2011年初发布的报告，在过去十年中增长了43%。

DESCRIPTION (provided by applicant): The growing prevalence of dementia, the health and mental health consequences for family caregivers, the lack of ethno-cultural and linguistic training programs for ethnic minority family caregivers, and the increasing penetration of the internet in ethnic minority communities underscore the need for an online training program for ethnic minority dementia caregivers. In response to the National Institute on Aging PA-06-049, we propose to develop and test the feasibility and preliminary effectiveness of an online self-directed, skill training intervention for Chinese and Hispanic adults providing care to individuals with Alzheimer's disease and related dementia. The overall goal of this project is to use internet-based technology to develop a self-directed training intervention that is designed to enhance caregiver management skills to improve self-efficacy, which we hypothesize will lead to reduced caregiver burden and emotional distress; and increase caregiver self-care skills, which we hypothesize will result in enhanced overall health and quality of life. Specifically, Phase I will develop a prototype for two internet-based SDL training programs, one for Chinese caregivers, and the other for Hispanic caregivers, to improve caregiving management skills and self care skills. An iterative formative evaluation will be performed to inform the process of designing the intervention components in order to ensure the usability, content validity, motivational design, and ethno-cultural and linguistic competency of the intervention. A randomized controlled trial will be conducted to assess preliminary effectiveness of the training intervention with regard to its impact on both caregivers and care recipients. The findings of this Phase I application will be used to develop a Phase II SBIR, in which we will conduct a large-scale randomized trial of the full scale SDL intervention. Phase 1 study results will provide the effect size necessary to determine the sample size needed for the Phase 2 application. Evidence of the effectiveness of the SDL training program will be a valuable contribution to the developing evidence-base of online caregiver training programs for ethnic minority caregivers. Successful accomplishment of the Phase II application will result in an innovative, online caregiver training service model with high commercialization potential. First, the use of the proposed technology will facilitate the delivery of competence-based training services, which can be offered either standing alone or in combination with other support-based services available for dementia caregivers. Second, the proposed training model can be applied not only for ethnic minority caregivers with dementia, but also for caregivers caring for older adults with other chronic conditions. PUBLIC HEALTH RELEVANCE: The proposed Phase I effort focuses on developing a self-directed skill training intervention program for ethnic Chinese and Hispanic dementia caregivers. This is highly relevant to the nation's public health not only because there is a persistent lack of ethno-cultural and linguistically competent education, support, and assistance programs for these ethnic minority groups, but also because Hispanic and Asian Americans are two fastest growing groups of the nation, increasing by 43% in the past decade, according to the Census Bureau report released in early 2011.