Overcoming Challenges to Conducting Disability-Related Comparative Effectiveness

项目简介/摘要背景：很少有比较有效性研究（CER）的研究侧重于改善残疾人的健康、功能和生活质量的干预措施。缺乏人力资本是一个重大障碍，因为关注残疾人的研究人员很少接受过CER培训。需要就提高研究能力的最重大障碍和最佳战略达成共识。CER可以为残疾人提供有关治疗方案的可靠信息，其最终目标是改善卫生服务的提供和结果。目的：为了解决这个问题，我们将举办一个研究培训和基础设施发展会议，在对残疾人CER感兴趣的研究人员中建立能力。方法：本次会议将由来自马萨诸塞州波士顿的三个国家医疗康复研究中心（NCMRR）医疗康复研究基础设施（MRRI）中心共同努力；新罕布什尔州达特茅斯；以及德克萨斯州的加尔维斯顿。我们将于2012年6月21日至22日在马萨诸塞州波士顿举行一次会议，届时将有100名专家、研究人员和主要利益相关者聚集在一起，寻求就克服实施残疾相关CER挑战的战略达成共识。会议将以主要研究人员的演讲和小组讨论开始，讨论与残疾相关的CER的主要挑战和不同研究设计的优点。随后将进行小组讨论，讨论从关键利益相关者群体的角度提高CER的战略。最后，市政厅式的会议将使所有与会者能够就需要解决的最关键问题达成共识，以提高这一重要领域的研究能力。传播：会议结束后，我们将根据小组讨论和市政厅会议记录制定一份共识声明。最后，我们将与一名教学媒体开发人员合作，将会议的内容和策略整合到一个多模块的残疾相关CER网络课程中，该课程将广泛传播，并将免费提供给任何感兴趣的参与者。一个由研究人员、卫生专业人员和利益攸关方组成的委员会将在会议前后定期举行会议，以确保会议和传播活动的最佳发展。评价：对所有会议和培训活动，在活动结束时完成评价

DESCRIPTION (provided by applicant): Project Summary /Abstract Background: Few comparative effectiveness research (CER) studies have focused on interventions that would improve the health, function and quality of life of persons with disability. Lack of human capital s a significant barrier, as few researchers who focus on persons with disability have CER training. Consensus is needed about the most significant barriers and best strategies to increase research capacity. CER can provide reliable information about treatment options for persons with disability, with the ultimate goal of improved health service provision and outcomes. Aims: To address this problem, we will conduct a research training and infrastructure development conference to build capacity among researchers interested in CER for persons with disability. Approach: This conference will be a collaborative effort between three National Center for Medical Rehabilitation Research (NCMRR) Medical Rehabilitation Research Infrastructure (MRRI) centers from Boston, Massachusetts; Dartmouth, New Hampshire; and Galveston, Texas. We will hold a conference in Boston, MA on June 21-22, 2012 which will bring together 100 experts, researchers and key stakeholders to seek consensus on strategies to overcome challenges to conducting disability-related CER. The conference will begin with presentations and panel discussions by leading researchers about key challenges to disability-related CER and the merits of different research designs. This will be followed by small group discussions on strategies to increase CER from the perspective of key stakeholder groups. Finally, a town-hall style meeting will allow all conference participants to reach consensus on the most critical issues that need to be addressed to increase research capacity in this important area. Dissemination: After the conference, we will develop a consensus statement based on the small group discussions and town hall proceedings. Finally, we will work with an instructional media developer to integrate the content and strategies developed from the conference into a multi-module web-based course on disability-related CER that will be widely disseminated and will be free for any interested participant. A committee that includes a cross-section of researchers, health professionals and stakeholders will meet regularly before and after the conference to ensure optimal development of the conference and dissemination activities. Evaluation: For all the conference and training activities, evaluations will be completed on conclusion of the activity and with on-line follow up surveys to assess the impact. PUBLIC HEALTH RELEVANCE: Project Narrative: Comparative effectiveness research (CER) is needed to provide reliable information about treatment options for persons with disability, with the ultimate goal of improving health service provision and health, functional and quality of life outcomes. However, few researchers who focus on persons with disability conduct CER. To increase the capacity of researchers who do disability-related CER, we will hold an in-person conference in Boston in June 2012, and will reach an international audience through online live streaming of the conference and a multi-module training course in disability-related CER that will be based on the conference content.