An Examination of Hospice Use Among Children

描述（由申请人提供）：本次K01指导研究科学家发展奖的目的是准备丽莎C.林德利，博士，注册护士独立的卫生服务和政策研究事业，特别关注儿科临终关怀。职业发展计划包括三个目标，以实现候选人的职业目标，包括：1)发展儿科临终关怀的临床和政策基础；2)掌握先进的研究方法和统计知识；3)拓展科研交流能力。发展计划将包括精心挑选的课程和活动，并由包括博士在内的专家导师和顾问团队指导。邵世龙，莫琳·里昂，詹妮弗·麦克，保罗·欧文和唐·布鲁斯。该计划还将包括进行一项研究，以检查儿童对临终关怀的使用情况，这将导致未来r系列拨款申请。本研究计划旨在了解儿童的特点如何影响安宁疗护服务的利用。本研究采用创新的地理资讯系统方法，并结合纵向行政资料，采用回顾性群组设计，探讨儿童安宁疗护使用的地理分布模式，找出儿童安宁疗护使用的地理集群，并比较儿童安宁疗护使用与不使用的地理集群；2)在控制社区特征的情况下，研究儿童特征（即地理、人口、健康）对儿童临终关怀使用的影响。预计这项研究的结果将为临床和政策倡议提供信息，以改善儿童临终关怀的可及性。

DESCRIPTION (provided by applicant): The purpose of this K01 Mentored Research Scientist Development Award is to prepare Lisa C. Lindley, PhD, RN for an independent health services and policy research career with a special focus on pediatric end-of-life care. The career development plan entails three objectives to achieve the career goals of the candidate that include: 1) developing a clinical and policy grounding in pediatric end-of-life care; 2) acquiring knowledge of advanced research methods and statistics; and 3) expanding research communication abilities. The development plan will consist of thoughtfully selected coursework and activities under the guidance of an expert mentorship and advisory team including Drs. Shih-Lung Shaw, Maureen Lyon, Jennifer Mack, Paul Erwin, and Don Bruce. The plan will also include conducting a study to examine hospice use among children that will lead to future R-series grant applications. The research project seeks to understand how the characteristics of children influence utilization of hospice care services. Using an innovative geographic information systems approach along with longitudinal administrative data, this study will employ a retrospective cohort design to address the following specific aims: 1) to explore geographic patterns of hospice use among children by describing the geographic distribution of pediatric hospice use, identify geographic clusters of pediatric hospice use, and compare geographic clusters of pediatric hospice use and nonuse; and 2) to examine the effects of child characteristics (i.e., geographic, demographic, health) on pediatric hospice use while controlling for community characteristics. It is anticipated that the results of the study will inform clinicaland policy initiatives on how to improve access to pediatric hospice care.