Data Analysis and Coordinating Center (DACC) for Research Training Activities

描述：(由申请人提供)：国家人类基因组研究所(NHGRI)由研究培训联盟(RTC)组成，在基因组学和伦理、法律和社会问题(ELSI)方面发起了一系列研究培训活动，重点是增加来自代表性不足少数群体(URM)的个人的成功参与。虽然不同的受赠人参与了评估和跟踪实现其自身计划目标的进展情况，但这并没有系统地进行，这使得很难比较和汇集不同计划的数据。RFA-HG-08-006的主要目标是建立一个数据分析和协调中心，以促进和简化整个地图倡议的评价和跟踪部分。圣路易斯华盛顿大学的一个跨学科调查小组在与RFA直接相关的领域拥有相当大的实力和经验，正在提交这份申请，以回应RFA。怀着实现RFA目标的强烈责任感，我们提出了4个具体目标：首先，我们将在审查每个培训中心目前实施的评估和跟踪工具后，为整个RTC开发补充评估和跟踪工具。第二，我们将创建一个基于网络的数据录入系统(DES)。已经为我们的一个夏季学院创建了一个原型，用于建立一个中央数据库，用于存放受赠者的RTC数据，这将成为所有数据分析的来源。第三，我们将定期使用标准方法对数据进行严格分析，并生成评估进展和结果的报告，在受资助者和培训协调员的年度会议上报告调查结果，以及在卫生与公众教育研究所国家咨询委员会的两年一次的会议上报告结果，并定期提供书面报告。第四，我们将根据需要在协调中心的其他领域提供必要的领导，并与RTC和NHGRI密切合作，实现RFA的目标。我们相信，我们拥有优势和经验，具备“人际交往技能”，熟悉RFA目标，但由于与任何研究培训中心没有直接联系，我们带来了一种新鲜感、客观性和灵活性。

DESCRIPTION: (provided by applicant): The National Human Genome Research Institute (NHGRI) has launched a series of research training activities in Genomics and Ethical, Legal, and Social Issues (ELSI), comprising the Research Training Consortium (RTC), with a focus on increasing the successful participation of individuals from Under Represented Minorities (URM). While the various grantees are involved in evaluating and tracking progress towards their goals for their own programs, this has not been done systematically, making it difficult to compare and pool data across programs. The major goal of RFA-HG-08-006 is to establish a Data Analysis and Coordinating Center (DACC) to facilitate and streamline the evaluation and tracking component for the entire MAP initiative. An interdisciplinary team of investigators with considerable strengths and experience in areas of direct relevance to the RFA from Washington University in St. Louis is submitting this application in response to the RFA. With a strong sense of commitment to accomplish the goals of the RFA, we propose 4 specific aims: First, we will develop complementary evaluation and tracking tools for the entire RTC after reviewing the evaluation and tracking instruments currently implemented within each of the training centers. Second, we will create a web-based Data Entry System (DES). a prototype of which has already been created for one of our Summer Institutes, for establishing a centralized database for deposition of the RTC data from grantees that will become the source of all data analysis. Third, we will periodically perform rigorous analyses of the data using standard methods and generate reports that would assess progress and outcomes, report the findings at annual meetings of the grantees and training coordinators and bi-annual meetings of the National Advisory Council of the NHGRI, and provide written reports periodically. Fourth, we will provide leadership as necessary in other areas as maybe customarily expected of coordinating centers and work closely with the RTC and the NHGRI in achieving the goals of the RFA. We believe that we have the strengths and experience as well as the "people skills" and familiarity with the RFA goals and yet we bring a sense of freshness, objectivity, and flexibility to the table by virtue of not being directly affiliated with any of the research training centers.