TRN Symposium 2016: Consensus Study Group Meeting for the Care of Girls and Women with Turner Syndrome

项目摘要 《关爱特纳综合征女童和妇女共识研究小组会议》将于 2016年7月24日至26日在俄亥俄州辛辛那提举行第29届特纳综合征年会 美国学会(TSSUS)。近十年前，心脏、内分泌、发育和 其他领域护理患有特纳综合征的女孩和妇女发表了最后一份协商一致的小组声明 对于确定这些建议中哪些在今天仍然适用以及哪些建议需要 已更新或已丢弃。本次研讨会将汇集在临床杂志上广泛发表的国际专家。 照顾患有特纳综合征的女孩和妇女。此外，与特纳同居的个人 综合症患者将积极参与。这些特别代表将介绍一项全面的 从病人的角度进行科学调查。此外，来自美国和其他主要国家的代表 欧洲医学会将参与其中。研讨会的具体目标是达成一项 综合研究小组就监测女孩和妇女健康的最佳方式达成共识 并出版了一份文件，对科学证据进行评级，以获得一份全面的 特纳综合征特有的健康管理策略。

Project Summary The “Consensus Study Group Meeting for the Care of Girls and Women with Turner Syndrome ” will be held on July 24th - 26th 2016 Cincinnati Ohio in conjunction with the 29th annual meeting of the Turner Syndrome Society of the United States (TSSUS). Nearly ten years after experts in cardiac, endocrine, developmental, and other areas of care of girls and women with Turner syndrome issued the last consensus group statement it is essential to determine which of those recommendations remain relevant today, and which ones need to be updated or discarded. This symposium will gather international experts who are widely published in the clinical care of girls and women who live with Turner syndrome. In addition, individuals who live with Turner syndrome will actively participate. These special delegates will present the results of a comprehensive scientific survey of the patients' perspective. In addition, representatives from the major American and European medical societies will participate. The specific aims of the symposium are to arrive at a comprehensive study group consensus for the best way to monitor the health of the girls and women who live with Turner syndrome and to publish a document that grades the scientific evidence for a comprehensive list of Turner syndrome specific health management strategies.