Pediatric Dermatology Research Alliance (PeDRA) Annual Conference

项目总结 儿科皮肤科是一个相对年轻的专业，缺乏关于 从婴儿期和儿童期开始的皮肤病的自然病史和长期后果。在……里面 此外，循证护理指南、标准化治疗方案和FDA- 大多数儿童皮肤病的已获批准的治疗方法很少。儿科 皮肤病研究联盟(Pedra)成立于2012年，旨在解决这些关键问题 未得到满足的需求。Pedra的主要使命是促进和促进高质量的协作 通过建立和维持多站点研究网络，开展儿科皮肤病研究。这个 Pedra的长期目标是利用这些研究来改善 患有皮肤病的儿童。年度会议是佩德拉取得成功不可或缺的一部分， 为教育研究人员、确定研究需求和确定研究需求的优先顺序提供论坛 机会，以及开发和启动创新项目。一种说教的结合 讲座、专家主导的互动讨论、小组和海报会议，以及关注疾病 小组会议是佩德拉会议的基础。这份建议书为期四年 2017年至2020年的会议，目标如下：1)提供教育和指导，以 新的和已建立的儿科皮肤科研究人员关注在 研究方法、拨款申请和项目管理；2)推进现有研究 在佩德拉的五个重点领域内开展项目并制定新的研究优先事项；以及3)启动 与整个组织同步的研究策略和协作临床研究 优先事项。这些会议的预期结果将是富有成效的互动和 合作伙伴关系将提高儿科皮肤病临床研究人员的工作效率 并导致进行有影响力的高质量研究。这些活动将加速 儿科皮肤科研究的步伐，使临床医生能够更好地了解、预防和 治疗儿童皮肤病。

PROJECT SUMMARY Pediatric dermatology is a relatively young specialty that has lacked robust data about the natural history and long-term outcomes of skin disorders that begin in infancy and childhood. In addition, evidence-based guidelines of care, standardized treatment protocols, and FDA- approved therapies for the majority of pediatric dermatologic disorders are sparse. The Pediatric Dermatology Research Alliance (PeDRA) was founded in 2012 to address these crucial yet unmet needs. PeDRA's primary mission is to promote and facilitate high-quality collaborative research in pediatric dermatology by creating and sustaining multi-site research networks. The long-term goal of PeDRA is to leverage such research to improve the health outcomes of children with skin disorders. Annual conferences have been integral to the success of PeDRA, providing a forum for educating investigators, identifying and prioritizing research needs and opportunities, and developing and initiating innovative projects. A combination of didactic lectures, expert-led interactive discussions, panel and poster sessions, and disease-focused small-group sessions are the foundation of PeDRA's meetings. This proposal is for four annual meetings from 2017 to 2020 with the following aims: 1) Provide education and mentorship to new and established pediatric dermatology investigators that attend to gaps and obstacles in research methodology, grant writing, and project management; 2) Advance existing research projects and develop new research priorities within PeDRA's five focus areas; and 3) Initiate research strategies and collaborative clinical studies that synchronize with organization-wide priorities. The expected outcome of these meetings will be productive interactions and partnerships that will enhance the productivity of clinical researchers in pediatric dermatology and lead to the conduct of impactful, high-quality studies. These activities will accelerate the pace of pediatric dermatology research, allowing clinicians to better understand, prevent and treat skin disease in children.