Research Support for Underrepresented Alzheimer's Caregivers

60岁以后疾病负担的主要贡献者之一是痴呆症，最常见的是老年痴呆症。 阿尔茨海默病的神经系统症状这种疾病的表现导致需要援助 游泳、洗澡、记忆、重新定位、安全和许多其他需求。世界范围内对无偿 愿意并能够提供目前生活到晚期的成年人所需的高技能服务的照顾者 患有阿尔茨海默病并发症的人有3980万，而且这个数字还在增加。 德克萨斯大学奥斯汀分校护理学院的研究人员Tracie Harrison博士（PI）和J Taylor Harden（Co-I）提交R13赠款申请，以获得会议资金，（2019年）以促进 照顾阿尔茨海默病和其他相关痴呆症患者的代表性不足的人的需求 国家哈特福德老年护理卓越中心（NHCGNE）会议期间。的 NHCGNE是一个18年的组织，建立在成员的综合利益，包括护理 组织和其他机构，主要位于大学内。这笔赠款的具体目的 应用程序是提供一个会议，卫星美国老年学会（GSA） 会议将为国家适应行动方案首脑会议做准备，该会议旨在满足国家对适应行动方案的需求。 老年痴呆症护理人员的干预措施。我们的会议将建立在国家适应行动方案开始的兴奋之上， 更深入地探索认知评估技能，并加强知识的传播， 来自不同背景的学生，与会者以及390万名专业护士提供护理， 美国护理人员被定义为参与一个人的医疗或日常活动的无偿个人 他们要么是老年人，要么是残疾人，或者在某种程度上需要定期帮助。资金将支持2019年 会议的主题是照顾多样性，广泛地定义多样性为个人从团体显示， 在生物医学、临床、行为和社会科学领域，包括个人， 代表性不足的种族/族裔群体、残疾人和/或弱势群体 背景（NIH，2018）。创新是在研究中代表性不足的照顾者的主题， 教育和连接早期和后期职业研究人员的过程以及评估方法。 可交付成果包括一份特刊出版物、通过博客按主题分发想法、增加国家影响评估 提交跟踪NIH RePorter会议后，以及知识和技能水平的整体提高。 对公众健康的好处将通过加强卫生实践直接实现。

One of the leading contributors to burden of disease after the age of 60 is dementia, most commonly the neurologic condition of Alzheimer’s disease. The manifestations of the disease result in the need for assistance with toileting, bathing, memory, reorientation, safety, and many other needs. The worldwide demand for unpaid caregivers willing and able to provide the highly skilled services needed by the adults currently living into late life with the complications of Alzheimer’s disease is 39.8 million, and that number is increasing. The University of Texas at Austin School of Nursing, the investigators, Dr. Tracie Harrison, (PI) and Dr. J Taylor Harden (Co-I) submit an R13 grant application for conference funding, (2019) to promote the caregiving needs of underrepresented people caring for people with Alzheimer’s disease and other related dementias during the National Hartford Center of Gerontological Nursing Excellence (NHCGNE) conference. The NHCGNE is an 18-year organization built on the combined interests of the membership, comprised of nursing organizations and other institutions, primarily situated within universities. The specific purpose of this grant application is to provide a caregiving conference, satellite to The Gerontological Society of America (GSA) conference that will bookend the NAPA Summit, which is designed to meet the National need for caregiving interventions by Alzheimer’s caregivers. Our conference will build on excitement begun by NAPA, push a deeper exploration of cognitive assessment skills, and enhance the diffusion of caregiving knowledge to students from diverse backgrounds, conferees as well as the 3.9 million professional nurses providing care in the U.S. Caregiver is defined as an unpaid individual involved with the medical or routine actions of a person who is either older, disabled, or in some way in need of regular assistance. Funding will support the 2019 conference with a theme of Caregiving Diversity, broadly defining diversity as individuals from groups shown to be nationally underrepresented in the biomedical, clinical, behavioral and social sciences, including individuals from underrepresented racial/ethnic groups, individuals with disabilities and/or from disadvantaged backgrounds (NIH, 2018). Innovation is seen in the topic of underrepresented caregivers in research, processes of educating and connecting early and later career researchers as well as the evaluation methods. The deliverables include a special issue publication, thematic distribution of ideas over a blog, increased NIA submissions tracked post-conference in NIH RePorter, and an overall increase in knowledge and skill level. The benefit to public health will be directly actualized through enhanced caregiving practice.