Patient-Reported Outcomes

患者报告结局、调查和人群研究（PROSPR）机构的目标是 支持对患者报告结局和其他行为结局的评估， MDACC的连续研究。PROSPR核心帮助研究者从多个方面， 设计和实施患者报告结果（PRO）数据。PROSPR核心提供研究 为调查人员提供支持，维护调查表库，设计数据收集程序， PRO和行为研究，提供数据收集服务（包括面对面访谈或 问卷管理在诊所，电话采访，和邮寄调查），并提供有效的 收集的PRO数据的数据输入。PROSPR数据管理团队开发信息系统 协助研究者管理研究参与者和数据。该团队还开发招聘和 参与者跟踪数据库，为PRO问卷数据创建数据输入数据库， 输入系统的准确性检查，以及内置的范围和有效性检查，并提供分析 为项目统计人员提供数据集，其中包括清理和评分数据。数据管理团队 可以创建工具，用于将参与者自动分配到研究条件，进行简单的随机化 或者一种称为最小化的自适应随机化形式，它类似于分层。PROSPR核心 该设施位于该部门癌症预防大楼内688平方英尺的办公空间内 行为科学该设施有9名工作人员，其中包括主任，副主任，核心 管理员、2名研究协调员、1名统计分析员和3名数据管理员。在过去的四年里， PROSPR核心已为87个用户提供了超过9，400小时的服务，其中47%已经过同行评审 资金。在这一时期，《国家社会发展方案》核心为15个方案提供了援助; 健康差异占56%的利用率，其次是GU，妇科，GI和乳腺 癌症占24%。未来，PROSPR核心计划1）提供基于网络的调查， 计算机自适应测试（CAT）的技术变得可用; 2）更充分地利用CaBIG， 正在扩大范围，以包括更多的人口科学研究; 3）为下列人员提供培训机会： 研究人员和研究人员，以提高他们的技能和知识，涉及PRO的研究 数据

The goal of the Patient-Reported Outcomes, Survey and Population Research (PROSPR) facility is to support the assessment of patient-reported outcomes and other behavioral outcomes in studies that span the continuum of research at MDACC. The PROSPR core assists investigators with multiple aspects of designing and implementing Patient Reported Outcome (PRO) data. The PROSPR core offers research support to investigators by maintaining a library of questionnaires, designing data collection procedures for PRO and behavioral studies, providing data collection services, (including face-to-face interviews or questionnaire administration in the clinic, telephone interviewing, and mailed surveys) and providing efficient data entry of the collected PRO data. The PROSPR data management team develops information systems to assist investigators in managing study participants and data. The team also develops recruitment and participant tracking databases, creates data entry databases for PRO questionnaire data that have double entry systems for accuracy checking, as well as built-in range and validity checks, and provides analysis datasets for project statisticians, which includes cleaning and scoring the data. The data management team can create tools for automating the assignment of participants to study conditions, for a simple randomization or a form of adaptive randomization called minimization, which is similar to stratification. The PROSPR core facility is housed in 688 square feet of office space in the Cancer Prevention Building within the Department of Behavioral Science. The facility has 9 staff members, which include the director, co-director, core manager, 2 research coordinators, a statistical analyst, and 3 data managers. Over the past 4 years, the PROSPR core has delivered over 9,400 hours of service to 87 users, of which 47% have been peerreviewed funded. In this period, the PROSPR core has provided assistance to 15 programs; Behavioral and Health Disparities accounted for 56% of the utilization, followed by GU, Gynecological, Gl and Breast Cancers which account for 24%. In the future, the PROSPR core intends to 1) offer web-based surveys, and computer adaptive testing (CAT) as the technology becomes available; 2) to more fully utilize CaBIG, which is expanding to include more population science research and; 3) to develop training opportunities for investigators and research staff to increase their skills and knowledge related to research involving PRO data.