SBIR Topic 246 - Integrating Patient-Reported Outcomes in Hospice and Palliative

该项目的总体目标是开发一种商业上可行的软件系统(PROCareLinks)，旨在解决向绝症患者提供最佳护理的具体问题和挑战，解决疼痛和其他症状的管理，并将生活质量作为综合衡量标准。该系统的一个核心目的是与患者及其家人、专业护理提供者、管理人员和研究人员进行交流，并在他们之间进行交流。基于HL7、CDISC和caBIG模型和标准，以及现有的Web应用平台，底层技术将实现集成、互操作性和对不断发展的知识和最佳实践的持续适应。软件架构将是基于网络的，从第一阶段基于PC浏览器的用户界面开始。在第二阶段，可以评估其他界面形式；主要选项是家庭中独立于互联网的设备，例如简化疼痛评级的可穿戴无线设备。关键组件功能区(模块)包括：在不同环境中随时间进行的患者报告评估、定制的界面显示和自动报告功能、基于协议的决策支持(具有个体差异)以及日程安排和资源管理。

The overall goal of this project is to develop a commercially viable software system (PROCareLinks) designed for the specific problems and challenges of providing optimal care to terminally ill patients, addressing the management of pain and other symptoms, with quality of life as an integrative metric. A core purpose for the system is communication with, and between patients and their families, professional care providers, administrators, and researchers. Based on HL7, CDISC, and caBIG models and standards, and an existing web application platform, the underlying technology will enable integration, interoperability, and ongoing adaptability to evolving knowledge and best practices. The software architecture will be web-based, starting with PC browser-based user interfaces in Phase I. In Phase II, other interface modalities can be assessed; a main option is internet-independent devices in the home, for example a wearable wireless device to simplify rating of pain. The key component functional areas (modules) include: patient reported assessment over time in different settings, tailored interface displays and automated reporting functions, protocol-based decision support with individual variation, and scheduling and resource management.