QUALITY OF LIFE IN TEEN AND ADULT WOMEN WITH PHENYLKETONURIA (PKU)

这个子项目是许多研究子项目中利用 资源由NIH/NCRR资助的中心拨款提供。子项目和 调查员(PI)可能从NIH的另一个来源获得了主要资金， 并因此可以在其他清晰的条目中表示。列出的机构是 该中心不一定是调查人员的机构。 这项研究将确定在营地环境中教授患有苯丙酮尿症(PKU)或枫糖浆尿症(MSUD)的青少年和年轻女性关于他们的疾病和营养相关问题的有效性。它还将研究参加新陈代谢训练营的北大患者的妊娠结局，并将她们的结果与其他没有参加代谢训练营的北大患者进行比较。

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. This study will determine the effectiveness of teaching teens and young women with Phenylketonuria (PKU) or Maple Syrup Urine Disease (MSUD) about their disease and nutrition related issues in a camp environment. It will also look at pregnancy outcome results in women with PKU who attend Metabolic Camp and compare their results to other women with PKU who have not attended the Metabolic Camp.