Extension of the World Trade Center Health Registry (U50)

世界贸易中心健康登记处是美国历史上最大的灾后暴露健康登记处， 正在跟踪执行9/11相关救援/恢复的71,437名直接受影响的不同队列 9/11/01在曼哈顿下城工作或居住、工作或上学。我们的目标是确定长期- 9/11世贸中心灾难对身心健康的长期影响；传播研究结果和 向参与者和其他曝光人员、公众和科学界提出建议；分享 有关9/11相关资源和服务的信息；并为医疗保健政策和灾难应对提供信息 计划。具体目标是：(1)保持书记官处作为一项宝贵的公共卫生资源；(2)扩大 继续开展书记官处工作，了解9/11事件对身心健康的长期影响 研究计划；(3)开展社区活动，回应身心健康关切 和参与者和其他受9/11影响的人的特定医疗需求；和(4)维持治疗 转介计划，帮助注册者找到与9/11相关的健康问题的护理。目标1活动将持续 通过通信和跟踪活动保持联系的关键注册基础设施 并最大限度地利用那些具有有效联系信息的参与者；及时与参与者沟通以 解决他们关心的问题，并保持他们对参与未来研究的参与和兴趣；外展 开展活动，加强对登记册研究的反应；与科学、社区和劳工进行协商 顾问。目标2需要利用第一波(2003-2004年)的数据进行优先流行病学分析 第二波(2006-08)和第三波(2011-12)调查，包括评估风险因素的分析 随着时间的推移发展或持续严重的呼吸系统和精神健康状况；发展和 使用多种调查模式(纸张、网络和电话)进行第四波调查，以确定 9/11事件后13-14年队列的健康状况和与9/11有关的保健需求；延长评估 9/11事件后10年的癌症和死亡率；以及调查潜在的新兴健康 通过公共卫生监测和后续研究了解情况。书记官处还将促进 独立和协作的9/11相关研究，为合格的外部研究人员提供 确定数据并访问登记的子组以进行招聘。目标3将通过传播 (例如，通过网站、年度报告、电子通讯)登记册的调查结果和建议以及 向参与者、公众和政策制定者提供与9/11相关的服务和资源的信息；发展 并为参与者提供去身份注册数据库和在线数据工具等数据资源， 公众和研究人员；目标4将通过向9/11参保者提供医疗转介来实现 相关健康状况和症状基于第3和第4波调查和 评估该计划，并与WTC健康计划分享研究结果。

The World Trade Center Health Registry, the largest post-disaster exposure health registry in U.S. history, is following a diverse cohort of 71,437 directly affected people who performed 9/11-related rescue/recovery work or lived, worked or attended school in lower Manhattan on 9/11/01. The goals are to identify the long- term physical and mental health effects of the 9/11 WTC disaster; disseminate findings and recommendations to enrollees and others exposed, the public, and the scientific community; share information about 9/11-related resources and services; and inform healthcare policy and disaster response planning. Specific aims are to: (1) Maintain the Registry as a valuable public health resource; (2) Expand knowledge about the long-term physical and mental health effects of 9/11 by continuing the Registry research program; (3) Conduct community activities to respond to the physical and mental health concerns and specific healthcare needs of enrollees and others exposed to 9/11; and (4) Maintain a Treatment Referral Program to help enrollees find care for 9/11-related health problems. Aim 1 activities will sustain critical Registry infrastructure through communications and tracing activities to maintain contact with enrollees and maximize those with valid contact information; timely communications with enrollees to address concerns and keep them engaged and interested in participating in future research; outreach activities to boost response to Registry studies; and consultation with scientific, community and labor advisors. Aim 2 entails conducting priority epidemiological analyses using data from the Wave 1 (2003-04) Wave 2 (2006-08) and Wave 3 (2011-12) surveys, including analyses to assess risk factors for the development or persistence of serious respiratory and mental health conditions over time; developing and conducting a Wave 4 survey using multiple survey modes (paper, web and telephone) to ascertain the health status and 9/11-related healthcare needs of the cohort 13-14 years after 9/11; extending assessment of cancer and mortality incidence through 10 years post-9/11; and investigating potential emerging health conditions through public health surveillance and follow-up studies. The Registry will also facilitate independent and collaborative 9/11-related research by providing qualified external researchers with de- identified data and access to enrollee subgroups for recruitment. Aim 3 will be achieved by disseminating (e.g., via a web-site, annual report, e-newsletters) Registry findings and recommendations together with information on 9/11-related services and resources to enrollees, the public and policy makers; developing and providing data resources such as de-identified Registry databases and online data tools for enrollees, the public and researchers; Aim 4 will be achieved by offering healthcare referrals to enrollees with 9/11 related health conditions and symptoms based on information from the Wave 3 and 4 surveys and evaluating the program and sharing findings with the WTC Health Program.