A Health Information Resource Technology to Reduce Disparities in Transgender Health

项目摘要/摘要 变性人群体在医疗保健方面面临重大障碍，包括缺乏获取信息的途径。 和有文化能力的医疗保健提供者。这项提案将通过发展一种健康的 信息资源解决方案，可减少正在考虑、过渡或 以变性人身份生活。科罗拉多大学安舒茨医学院的研究小组由以下成员组成 敬业的临床医生、研究人员、信息学家、开发人员和社区组织，他们都有 专业知识和对改善变性人健康的兴趣。该项目旨在1)确定变性人的健康 通过让变性人社区中的多个利益攸关方参与，实现信息需求和资源，以及 收集和评估他们的需求，以及2)利用迭代设计过程制作原型并构建 信息资源，并评估其可用性。这些目标与NLM的2017年战略计划一致- 2017年，因为将通过加强宣传和参与接触到变性人 途径，特别是通过利用以用户为中心的设计方法，其中产品是重点 人口需求，并不断量身定做以满足这些需求。这将通过以下方式实现： 几个焦点小组和与TG社区代表的设计会议。信息来自 这些会议将使用定性分析进行分析，并纳入信息资源 以移动应用程序的形式交付。开发团队还将集成一个推荐系统， 也是在利益攸关方的通知下，共享向最终用户推荐的资源。最后的健康 信息资源解决方案将有助于改善变性人社区的健康和福祉， 并最终缩小差距，支持个人医疗保健决策和与 医疗保健系统。

PROJECT SUMMARY/ABSTRACT The transgender community faces significant barriers to healthcare including the lack of access to information and culturally competent healthcare providers. This proposal will tackle this challenge by developing a health information resource solution to reduce health disparities for individuals who are considering, transitioning, or living as transgender. The study team at the University of Colorado Anschutz Medical Campus is made up of dedicated clinicians, researchers, informaticists, developers and a community organization, all who have expertise and an interest in improving transgender health. The project aims to 1) identify transgender health information needs and resources through engaging multiple stakeholders in the transgender community, and collecting and evaluating their needs, and 2) utilize an iterative design process in prototyping and building the information resource, and assessing its usability. These aims are in alignment with NLM’s Strategic Plan 2017- 2017, as the transgender population will be reached using enhanced dissemination and engagement pathways, specifically through utilizing user-centered design methods in which the product is focused on population needs and is continuously tailored to meet those needs. This will be accomplished by conducting several focus groups and design sessions with representatives of the TG community. The information from these sessions will be analyzed using qualitative analysis, and incorporated into the information resource delivered in the form of a mobile application. The development team will also integrate a recommender system, also informed by stakeholders, that shares recommended resources to the end-user. The final health information resource solution will contribute to improved health and well-being of the transgender community, and ultimately reduce disparities and support personal healthcare decision making and engagement with the healthcare system.