A Health Information Resource Technology to Reduce Disparities in Transgender Health

项目概要/摘要 跨性别群体在医疗保健方面面临重大障碍，包括缺乏获取信息的途径。 以及具有文化能力的医疗保健提供者。这项提案将通过发展一种健康的 信息资源解决方案，以减少正在考虑、过渡或 作为变性人生活科罗拉多大学安舒茨医学院的研究小组由 专门的临床医生、研究人员、信息学家、开发人员和社区组织， 专业知识和改善跨性别健康的兴趣。该项目旨在1）确定跨性别健康 通过让跨性别群体的多个利益攸关方参与，满足信息需求和提供资源， 收集和评估他们的需求，以及2）在原型设计和构建 信息资源，并评估其可用性。这些目标与NLM的2017年战略计划一致- 2017年，将通过加强传播和参与， 途径，特别是通过利用以用户为中心的设计方法，其中产品的重点是 人口的需求，并不断调整以满足这些需求。这将通过进行 几个焦点小组和设计会议与TG社区的代表。的信息 这些会议将使用定性分析进行分析，并纳入信息资源 以移动的应用程序的形式提供。开发团队还将整合一个推荐系统， 也由利益攸关方提供信息，向最终用户分享建议的资源。最终健康 信息资源解决方案将有助于改善变性人社区的健康和福祉， 并最终减少差异，支持个人医疗保健决策和参与 医疗保健系统。

PROJECT SUMMARY/ABSTRACT The transgender community faces significant barriers to healthcare including the lack of access to information and culturally competent healthcare providers. This proposal will tackle this challenge by developing a health information resource solution to reduce health disparities for individuals who are considering, transitioning, or living as transgender. The study team at the University of Colorado Anschutz Medical Campus is made up of dedicated clinicians, researchers, informaticists, developers and a community organization, all who have expertise and an interest in improving transgender health. The project aims to 1) identify transgender health information needs and resources through engaging multiple stakeholders in the transgender community, and collecting and evaluating their needs, and 2) utilize an iterative design process in prototyping and building the information resource, and assessing its usability. These aims are in alignment with NLM’s Strategic Plan 2017- 2017, as the transgender population will be reached using enhanced dissemination and engagement pathways, specifically through utilizing user-centered design methods in which the product is focused on population needs and is continuously tailored to meet those needs. This will be accomplished by conducting several focus groups and design sessions with representatives of the TG community. The information from these sessions will be analyzed using qualitative analysis, and incorporated into the information resource delivered in the form of a mobile application. The development team will also integrate a recommender system, also informed by stakeholders, that shares recommended resources to the end-user. The final health information resource solution will contribute to improved health and well-being of the transgender community, and ultimately reduce disparities and support personal healthcare decision making and engagement with the healthcare system.