RDCRC Administrative Core

摘要 行政核心的设计是为了确保开发、传播和 遗传性神经病联合会(INC)RDCRC所获得的新知识的应用。 中央行政核心(CAC)负责Inc.的整体管理 并将监督和协调各组件和项目之间的交互 The Inc.为了实现这一目标，CAC由Michael Shy教授担任 Inc.RDCRC，Steven Scherer教授担任行政总监，David教授 Herrmann担任Inc.的临床联络人，Shawna Feely女士和切尔西·培根女士担任临床 协调员和助理临床协调员。内部咨询委员会将与 在每月的电话会议上直接与CAC联系。IAB包括现场PI、The Five Inc. 患者倡导团体(PAG)，Inc.首席生物统计师和DMCC代表。我们 增加了国际联络、多样性联络和临床试验委员会，以进行互动 和实验室一起工作。最后，我们将继续与Inc.外部咨询委员会互动 (EAC)，由国际公认的调查人员组成，PI来自其他 RDCRC和Inc.PAG的代表。

Abstract The Administrative Core is designed to ensure efficiency in the development, dissemination and application of new knowledge obtained by the Inherited Neuropathy Consortium (INC) RDCRC. The Central Administrative Core (CAC) is responsible for the overall administration of the INC and will oversee and coordinate interactions between the various components and projects of the INC. To achieve this goal, the CAC is comprised of Professor Michael Shy as the Director of INC RDCRC, Professor Steven Scherer as the Administrative Director, Professor David Herrmann as Clinical Liaison to the INC, Ms. Shawna Feely and Ms. Chelsea Bacon, as Clinical Coordinator and Assistant Clinical Coordinator. The Internal Advisory Board (IAB) will interact directly with the CAC on monthly conference calls. The IAB includes site PIs, the five INC Patient Advocacy Groups (PAGs), the INC Chief Biostatistician and DMCC representatives. We have added an International Liaison, a Diversity Liaison and Clinical Trial Committee to interact with the IAB. Finally, we will continue to interact with the INC External Advisory Committee (EAC) which is composed of internationally recognized investigators, PIs from additional RDCRC and representatives of the INC PAGs.