Outreach, Recruitment and Engagement Core

项目摘要/摘要--外联、征聘和参与核心 外联、招聘和接洽(ORE)核心在以下方面发挥重要作用 梅奥诊所阿尔茨海默病研究中心(ADRC)：(1)促进招募和 不同参与者对临床、神经影像、生物标记物和神经病理学的保留 研究中心，(2)开发和评估针对残疾人的创新支持计划 阿尔茨海默病(AD)和AD相关疾病(ADRD)及其亲人，以及(3)进展 努力提高认识并使社区做好准备，以更好地管理和支持患有AD的居民 &ADRD及其家人通过以社区为基础的解决方案。在两个地理位置运营 以协调的方式区分不同的地点，ORE核心努力通过有针对性的地点- 在佛罗里达州杰克逊维尔(MCF)和明尼苏达州罗切斯特(MCR)的具体活动。中心整体招聘人数为 通过临床核心研究人员的临床实践进行管理，使ORE核心专注于 特别针对当地杰克逊维尔社区的非裔美国人的招募工作。这些 通过与联合国儿童基金会合作开展和开展的活动和事件来支持这些努力 梅奥诊所ADRC非裔美国人社区推广和咨询委员会，执行董事会 以及杰克逊维尔新城成功区、杰克逊维尔痴呆症之城的视觉守护者 护理和治疗倡议，阿尔茨海默氏症协会佛罗里达州中部和北部分会，以及当地 护理者支持机构。我们将通过一个新的计划来促进非洲裔美国人参与者的留住 与临床核心合作，为这些患者提供高级护理规划服务 参与者。在患者和照顾者教育方面促进留住和提供最佳实践 ORE CORE将继续开发和完善创新的护理计划，参与者将在其中发挥作用 在确定目标和评估成果方面发挥核心作用。这些努力将主要集中在 路易躯体障碍和额颞痴呆患者反映我们的中心主题 神经退行性疾病之间的异同。保留活动，如年度 参与者感谢午餐会将继续在这两个地点举行。提高社区意识和 应对AD和ADRD患者的福祉威胁，我们将继续促进 通过痴呆症友好社区(DFC)开发基于社区的解决方案 这是我们外展和接触努力的一个框架。我们将评估这些计划对以下方面的影响 对疾病进展和生活质量产生负面影响的社会结构，我们将继续 努力实施和评估DFC模式在非裔美国人社区中的影响。

PROJECT SUMMARY/ABSTRACT - OUTREACH, RECRUITMENT AND ENGAGEMENT CORE The Outreach, Recruitment, and Engagement (ORE) Core serves an essential role in the Mayo Clinic Alzheimer's Disease Research Center (ADRC) by: (1) facilitating recruitment and retention of diverse participants into the clinical, neuroimaging, biomarker, and neuropathology studies of center, (2) developing and evaluating innovative support programs for persons with Alzheimer's disease (AD) & AD-related disorders (ADRD) and their loved ones, and (3) advancing efforts to raise awareness and prepare communities to better manage and support residents with AD & ADRD and their families through community-based solutions. Operating at two geographically distinct sites in a coordinated fashion, ORE Core efforts meet center goals through targeted, site- specific activities in Jacksonville, FL (MCF) and Rochester, MN (MCR). Overall center recruitment is managed through the clinical practices of Clinical Core investigators, allowing ORE Core to focus recruitment efforts specifically on African Americans in the local Jacksonville community. These efforts are supported through activities and events developed and delivered in partnership with the Mayo Clinic ADRC African American Community Outreach & Advisory Board, the executive board and Vision Keepers of Jacksonville's New Town Success Zone, the City of Jacksonville's Dementia Care & Cure Initiative, the Central & North Florida chapter of the Alzheimer's Association, and local caregiver support agencies. We will foster retention of African American participants through a new collaborative effort with Clinical Core to provide advanced care planning services for these participants. To foster retention and inform best practices in patient and caregiver education, MCR ORE Core will continue to develop and refine innovative care programs in which participants will play a central role in identifying goals and evaluating outcomes. These efforts will focus primarily on persons with Lewy Body Disorders and Frontotemporal Dementia to reflect our center theme of Similarities and Differences Among Neurodegenerative Diseases. Retention events such as annual participant appreciation luncheons will continue at both sites. To increase community awareness and address threats to the well-being of persons with AD & ADRD, we will continue to foster the development of community-based solutions through the Dementia Friendly Community (DFC) framework of our outreach and engagement efforts. We will evaluate the impact of these programs on social constructs that negatively impact disease progression and quality of life, and we will continue efforts to implement and evaluate the impact of the DFC model in an African American community.