Improving Access to Diabetes Information for Deaf and Hard of Hearing Populations

项目摘要 聋人和重听人(DHH)人群的糖尿病发病率高于听力人群 人口，很可能是由于缺乏获得语言和文化相关的健康的机会 信息。美国手语的语法结构和句法与英语不同， 因此，书面糖尿病教育材料(例如，讲义、网站)可能无法理解 一位患有糖尿病的DHH患者。鉴于此，DHH人群有一个关键的障碍 糖尿病信息，但确实可以利用技术，如互联网，获得 使用美国手语的信息。我们的首要目标是增加糖尿病的可及性 通过开发和测试一个网站的教育内容，聋人可以一起，在美国标志 语言。我们的社区咨询委员会已经确定了需要一位值得信赖的聋人- 友好“网站将包括美国手语视频，无论有没有 补充图片、视觉图形、讲故事和视觉演示。这样的一个网站 将填补缺乏获得卫生信息的空白。这项研究是由Adapt提供的 技术接受和使用的模型和统一理论。我们的具体目标是：第一， 制作并建立一个糖尿病信息网站，Deaf Can Together，它解决了 聋人和重听人群的文化和语言需求。具体来说，我们将共同- 与我们现有的社区顾问委员会一起设计DHH社区的网站。 其次，我们将一起评估聋人CAN的可用性、可接受性和有效性 网站。使用混合方法，我们将从N=40名DHH患者中收集数据 被允许访问该网站的糖尿病患者。第三，我们将进行初步传播 聋人可以在一起的网站。我们有几个合作伙伴进行传播，包括DHH 组织、专业糖尿病组织和国家图书馆网络 医疗区4.通过多管齐下的方法，我们将接触到与 糖尿病，护理糖尿病患者的临床医生，以及医学图书馆员。我们 预计提供文化和语言上量身定制的糖尿病网站将显著 减少DHH社区的健康差距。

Project Summary Diabetes rates are higher in Deaf and hard of hearing (DHH) populations than hearing populations, most likely due to a lack of access to linguistically and culturally relevant health information. American Sign Language has a different grammar structure and syntax to English, therefore written diabetes education materials (e.g., handouts, websites) may not be understood by a DHH person living with diabetes. Given this, DHH populations have a critical barrier to diabetes information, yet do have access to technology, such as the internet, to obtain information in American Sign Language. Our overarching goal is to increase access to diabetes education content by developing and testing a website, Deaf Can Together, in American Sign Language. Our community advisory board has identified the need for a trustworthy and “Deaf- friendly” website that will include videos in American Sign Language with or without supplemental pictures, visual graphics, storytelling, and visual demonstration. Such a website will fill the gap in the lack of access to health information. This study is informed by the ADAPT model and Unified Theory of Acceptance and Use of Technology. Our specific aims are to first, prototype and build a diabetes informational website, Deaf Can Together, that addresses the cultural and linguistic needs of Deaf and hard of hearing populations. Specifically, we will co- design the website with the DHH community with our existing community advisory board. Second, we will evaluate the usability, acceptability, and efficacy of the Deaf Can Together website. Using a mixed method approach, we will collect data from N=40 DHH people with diabetes who are given access to the website. Third, we will conduct an initial dissemination of the Deaf Can Together website. We have several partners for dissemination, including DHH organizations, professional diabetes organizations, and the Network of National Libraries of Medicine Region 4. Using a multipronged approach, we will reach DHH people living with diabetes, clinicians who care for DHH people living with diabetes, and medical librarians. We expect that providing culturally and linguistically tailored diabetes website will significantly reduce health disparities in the DHH community.