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Core E: Outreach, Recruitment, and Engagement Core

Core E: Outreach, Recruitment, and Engagement Core
核心 E:外展、招聘和参与核心
批准号:
10264192
负责人:
DAVID W COON
金额:
$17.76万
依托单位国家:
美国
项目类别:
财政年份:
2021
资助国家:
美国
项目状态:
未结题
起止时间:
2021-09-05 至 2026-06-30

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中文摘要
翻译
项目概要/摘要-外展、招募和参与核心 外联、招募和参与(ORE)核心在ADRC中发挥着关键作用,与所有人互动, 其他核心,并制定和协调其推广,招聘和参与工作,在我们的 亚利桑那州的人口为727万2,年龄在65岁及以上, 预计到2025年,阿尔茨海默病(AD)的发病率将增长33.3%,这是美国增长最快的一年。 西班牙裔/拉丁裔构成亚利桑那州最大的少数民族(31.7%),仅美洲原住民(5.3%) 代表该州最大的少数民族。2 ORE核心向服务不足的社区伸出援手, 教育、参与和研究,并帮助确保临床核心中的参与者群体多样化, 神经病理学核心(通过大脑和身体捐赠),由NIA发起的多中心项目,以及相关的 research. ORE核心认识到ADRD不仅影响ADRD患者,而且影响亚利桑那州的ADRD患者。 346,000名ADRD家庭成员。3它通过传播以下方面的最新信息,成为一种独特的资源: ADRD,针对感兴趣的健康成人的研究,以及ADRD研究、治疗和 照顾病人和照顾者。亚利桑那州的多样性和多组织模式要求我们的ORE 核心方法是有意多方面的,以满足我们的ADRC组织的需求和细微差别, 社区合作伙伴和不同的社区。我们使用社会营销和社区参与式研究 方法,以帮助确定最佳做法,建立在过去的成功和经验教训,并利用新的 机会例子包括:(1)领导或合作关于ADRD研究进展的活动, 治疗和护理,包括为服务不足的社区举办的活动(例如,班纳阿尔茨海默病研究所年度 美洲原住民和阿尔茨海默病会议);(2)扩大Zoom提供的活动和奖项- 赢得英语和西班牙语的护理人员计划;15-18(3)开发新的或更新现有的产品(例如, 拉丁裔个人故事视频);(4)通过登记和其他研究, MindCrowd,21,22阿尔茨海默病预防登记处,19和NIH的所有人;(5)与原生AD合作 华盛顿州立大学少数民族老龄化研究资源中心 南加州大学老龄健康经济学研究中心;(6)推进我们的社交媒体 通过更新的网站和通过Facebook,Twitter和YouTube的存在;(7)收集反馈, 社区需求和ORE社区咨询委员会、利益相关者焦点小组的核心战略, 以及招聘和留用跟踪表格。ORE活动将结合我们ADRC的主题“血- 基于生物标志物(BBB)的ADRD诊断,临床前研究和预防。
英文摘要
PROJECT SUMMARY/ABSTRACT - OUTREACH, RECRUITMENT AND ENGAGEMENT CORE The Outreach, Recruitment and Engagement (ORE) Core plays a critical role in the ADRC, interacting with all other Cores, and developing and coordinating its outreach, recruitment, and engagement efforts across our geographically diverse state.1 Arizona's population of 7.27 million people2 that are aged 65 and older and living with Alzheimer's disease (AD) is expected to grow 33.3% by 2025—the largest increase in the US.3 Hispanics/Latinos constitute Arizona's largest ethnic minority (31.7%), and Native Americans alone (5.3%) represent the state's largest racial minority.2 The ORE Core reaches out to underserved communities for education, engagement, and research and to help ensure diverse participant cohorts in the Clinical Core, the Neuropathology Core (via brain and body donation), multicenter programs initiated by NIA, and related research. The ORE Core recognizes that ADRD not only affects people living with ADRD, but also Arizona's 346,000 ADRD family caregivers.3 It serves as a unique resource by disseminating up-to-date information on ADRD, research studies for interested healthy adults, and advancements in ADRD research, treatment, and care for patients and caregivers. Arizona's diversity and our multi-organizational model require that our ORE Core approach be intentionally multifaceted to meet the needs and nuances of our ADRC's organizations, community partners, and diverse communities. We use social marketing and community participatory research methods to help identify best practices, build on past successes and lessons learned, and leverage new opportunities. Examples include: (1) leading or collaborating on events about advances in ADRD research, treatment, and care, including events for underserved communities (e.g., Banner Alzheimer's Institute's Annual Native Americans & Alzheimer's Disease Conference); (2) expanding Zoom delivery of events and award- winning caregiver programs in English and Spanish;15-18 (3) developing new or updating existing products (e.g., Latino Personal Stories videos); (4) fostering minority recruitment through registries and other studies like MindCrowd,21,22 Alzheimer's Prevention Registry,19 and NIH's All of Us; (5) partnering with the Native AD Resource Center for Minority Aging Research (NAD RCMAR) at Washington State University and the Minority Aging Health Economics Research Center at University of Southern California; (6) advancing our social media presence through an updated website and via Facebook, Twitter, and YouTube; and (7) gathering feedback on community needs and ORE Core strategies from our Community Advisory Board, stakeholder focus groups, and recruitment and retention tracking forms. ORE activities will incorporate our ADRC's theme of “blood- based biomarkers (BBB) in the diagnosis, preclinical study and prevention of ADRD.”
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