2022 Pediatric Dermatology Research Alliance (PeDRA) Annual Conference

项目总结 儿科皮肤科是一个相对年轻的专业，缺乏关于自然历史和 从婴儿期和儿童期开始的皮肤病的长期后果。此外，以证据为基础 大多数儿科疾病的护理指南、标准化治疗方案和FDA批准的疗法 皮肤病是少见的。儿科皮肤病研究联盟(PEDRA)成立于#年 2012年，以满足这些关键但尚未得到满足的需求。佩德拉的主要使命是创造、激励和维持 预防、治疗和治愈儿童皮肤病的研究。佩德拉的长期目标是利用这样的 旨在改善皮肤病儿童健康状况的研究。年度会议一直是 Pedra的成功不可或缺，为教育调查人员、确定和确定优先事项提供了一个论坛 研究需求和机会，以及开发和发起创新项目。一种说教的结合 讲座、专家主导的互动讨论、技能培养研讨会、小组和海报会议，以及疾病- 集中的小组会议是佩德拉会议的基础。这项建议是为第十届佩德拉而提出的 年度会议定于2022年11月举行，目标如下：1)提供教育和 与相关研究技能相关的参与机会，建立和利用社区来推动 科学，整合儿科皮肤病研究的公平性、多样性和包容性；2)推进 现有研究项目，并在Pedra的重点领域内制定新的研究优先事项；以及3)提供 将广大调查人员的最终和正在进行的研究成果传播给 不同的受众，包括患者利益相关者、行业代表和来自多个 包括潜在的NIH合作者在内的领域。这次会议的预期成果是一套更发达的 当前和未来的内科科学家的研究技能，提高的生产力，加强的网络， 以及进行高质量的研究。这些活动将加快儿科皮肤科的步伐 研究，使临床医生更好地了解、预防和治疗儿童皮肤病，并给予 患者和家属选择管理疾病和做出知情的治疗决定。

PROJECT SUMMARY Pediatric dermatology is a relatively young specialty that has lacked robust data about the natural history and long-term outcomes of skin disorders that begin in infancy and childhood. In addition, evidence-based guidelines of care, standardized treatment protocols, and FDA-approved therapies for the majority of pediatric dermatologic disorders are sparse. The Pediatric Dermatology Research Alliance (PeDRA) was founded in 2012 to address these crucial yet unmet needs. PeDRA's primary mission is to create, inspire, and sustain research to prevent, treat, and cure childhood skin disease. The long-term goal of PeDRA is to leverage such research to improve the health outcomes of children with skin disorders. Annual conferences have been integral to the success of PeDRA, providing a forum for educating investigators, identifying and prioritizing research needs and opportunities, and developing and initiating innovative projects. A combination of didactic lectures, expert-led interactive discussions, skill-building workshops, panel and poster sessions, and disease- focused small-group sessions are the foundation of PeDRA's meetings. This proposal is for the 10th PeDRA Annual Conference, set to take place in November of 2022 with the following aims: 1) Provide education and engagement opportunities related to relevant research skills, building and leveraging community to advance science, and integrating equity, diversity, and inclusion across pediatric dermatology research; 2) Advance existing research projects and develop new research priorities within PeDRA's focus areas; and 3) Provide a forum for the dissemination of final and ongoing research results from a broad group of investigators to a diverse audience that includes patient stakeholders, industry representatives, and researchers from multiple fields including potential NIH collaborators. The expected outcomes of this meeting are a more developed set of research skills for current and future physician-scientists, enhanced productivity, strengthened networks, and the conduct of high-quality research. These activities will accelerate the pace of pediatric dermatology research, allowing clinicians to better understand, prevent and treat skin disease in children, and giving patients and families options to manage diseases and make informed treatment decisions.