South Texas Alzheimer’s Disease Center Outreach, Recruitment and Engagement Core

外展、招聘和参与摘要(OREC) 到2050年，65岁以上的西班牙裔成年人预计将占总人口的20%，高于 20101年为7%。然而，他们在研究中的代表性仍然不足2，3。情况甚至更糟 至关重要，因为西班牙裔美国人受阿尔茨海默氏症S病(AD)的影响不成比例。作为 南得克萨斯州阿尔茨海默病S疾病中心面向社区的实体，外展， 招聘和参与核心(OREC)将支持包容性、参与性和持续性 南得克萨斯州不同老年人口及其照顾者的参与作为研究 参与社会、行为和生物医学研究，包括临床试验。此外， OREC将加强现有的基础设施，以传播和转化研究进展 这可能会影响参与的社区-本地和非本地社区-并有一个积极的机制 获取社区对其服务和研究的反馈，建立真正的双向 沟通。OREC的具体目标是(1)系统地评估社区 AD及相关障碍(ADRD)研究中的优先事项、需求、障碍和兴趣 通过举办不限成员名额的焦点小组、深入访谈和调查(2) 扩大社区-学术伙伴关系的能力，以支持招聘和 在南得克萨斯州保留城市和农村的老年拉美裔及其家人，特别是 通过a)接受来自社区咨询机构的建议和投入 理事会(CAB)b)在其他领域向STAC主要成员提供技术援助和培训 核心和c)向其他核心的STAC主要成员提供技术援助和培训；(3) 与STAC的其他核心合作，招募、吸引和留住参与者；以及 (4)向科学界、卫生保健提供者和 我们在南得克萨斯州服务的社区，特别是老年人和他们的照顾者。我们会 通过一项综合计划实现这些目标，以促进对 南方不同和服务不足人口的参与和参与的决定因素 并创造和最大限度地利用参与和社区培训的渠道 促进采用促进参与研究的最佳做法。我们会 为研究人员、医疗保健提供者、倡导者和 政策制定者对缩小影响老年拉美裔的健康差距感兴趣 阿德勒。为了实现这些目标，我们建立了一支具有丰富经验的科学家团队 在社区变革、基于社区的研究、教育、招募和保留 来自德克萨斯大学(UT)系统内两个机构的西班牙裔人口 健康圣安东尼奥和德克萨斯州格兰德河谷。通过整合和利用资源，我们 将创造一个欢迎的学习环境，并通过我们的伙伴关系和直接访问 南方卫生机构、保健提供者、临床医生和社区组织 我们得克萨斯州具有得天独厚的优势，可以最大限度地招聘、评估和留住 拉美裔，这是一个在ADRD研究中代表性不足的群体。

Summary Outreach, Recruitment and engagement (OREC) In 2050, Hispanic adults over age 65 are expected to account for 20% of the population, up from 7% in 20101. However, they remain underrepresented in research2,3. The situation is even more critical since Hispanics are disproportionately affected by Alzheimer´s disease (AD). As the community facing entity of the South Texas Alzheimer´s Disease Center (STAC), the Outreach, Recruitment and Engagement Core (OREC) will support inclusive, engaged and sustained participation of diverse older adult populations and their caregivers in South Texas as research participants in social, behavioral, and biomedical research including clinical trials. Furthermore, the OREC will strengthen current infrastructure to disseminate and translate research advances that can impact the engaged communities –local and lay- and has an active mechanism to obtain community feedback on its services and research, to establish true bi-directional communication. The specific aims of the OREC are (1) systematically assess community priorities, needs, barriers to, and interests in AD and related disorders (ADRD) research in South Texas through conduct of open-ended focus groups, in-depth interviews, and surveys (2) expand capacity for community-academic partnerships that will support the recruitment and retention of older urban and rural Hispanics and their families in South Texas and in particular along the US/Mexico border through a) receiving advice and input from a Community Advisory Board (CAB) b) providing technical assistance and training to key STAC members in other cores and c) providing technical assistance and training to key STAC members in other core; (3) work collaboratively with the other STAC cores to recruit, engage and retain participants; and (4) disseminate research findings to the scientific community, health care providers and the communities we serve in South Texas, particularly to elderly and their caregivers. We will achieve these aims through an integrated program to promote a deep understanding of the determinants of participation and engagement of diverse and underserved populations of South Texas and creating and maximizing channels for engagement and community training to facilitate the adoption of best practices promoting participation in research studies. We will create a state-of-the art infrastructure for researchers, health care providers, advocates and policy makers interested in decreasing health disparities affecting older Hispanics affected by ADRD. To accomplish these goals, we have built a team of scientists with extensive experience in community change, community–based research, education, recruitment and retention of Hispanic populations, from two institutions within the University of Texas (UT) system, UT Health San Antonio and the UT Rio Grande Valley. By integrating and leveraging resources, we will create a welcoming study environment and through our partnerships and direct access to health agencies, health care providers, clinicians and community-based organizations of South Texas we are uniquely positioned to maximize recruitment, assessment and retention of Hispanics, a group that is underrepresented in ADRD studies.