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描述(由申请人提供): 神经纤维瘤病(NF)会议自1985年以来每年由儿童肿瘤基金会组织。NF Conference起源于一个名为“NF Consortium”的团体的研讨会式聚会,现已发展成为国际NF研究人员和医生最大和最重要的年度聚会。来自世界各地的280名NF研究人员和临床医生参加了2009年NF会议。这种增长的一个主要贡献者是近年来NF研究取得的重大进展,特别是临床试验和药物治疗开发的进展。传统上是一个研究信息交流和建立共识的论坛,近年来,NF会议也已成为报告神经纤维瘤病临床前治疗管道和神经纤维瘤病临床试验竞技场的主要国际论坛。2010年NF会议的主题是“回到未来”,在结构和布局上,它在很大程度上回归了会议最初发展的基于研讨会的模式。2010年NF会议的目标将是评估NF研究已经走了多远,以及剩下的主要挑战和争议是什么。这将在四天的时间里以各种会议模式进行探索。一般会议将侧重于NF中的特定主题和主题,并通过顶级研究人员的演讲进行审查,从基础研究问题到转化和临床问题。小组和圆桌会议将采取挑衅性的话题,并通过讨论和观众参与驱动。抽象的平台和海报会议的布局,以充分关注更广泛的新研究,特别是年轻的研究人员。认识到本次会议作为NF临床社区论坛的重要作用日益增长,通过基金会的NF诊所网络,将在主要会议之前举行为期一天的研讨会,针对NF诊所协调员,护士和遗传咨询师。总的来说,2010年NF会议将为NF社区带来另一个新的视角,同时仍然是NF研究和临床护理信息日历中的首要年度活动。 公共卫生相关性:儿童肿瘤基金会NF会议自1985年成立以来一直有着丰硕的历史,它作为神经纤维瘤病社区研究人员和临床医生的首要年度聚会发挥着关键作用。该会议是一个为来自世界各地的神经纤维瘤病研究人员和临床医生提供研究信息交流和讨论的论坛,传统上促进了合作,建立共识,并在临床试验中达到顶峰的转化研究的进展。近年来,会议出席人数从2005年的140人增加到2009年的280人,这主要是由于随着神经纤维瘤病领域的发展,临床议程的组成部分不断扩大。
英文摘要
DESCRIPTION (provided by applicant): The Neurofibromatosis (NF) Conference has been organized by the Children's Tumor Foundation annually since 1985. With its roots in a workshop-style gathering of a group called the 'NF Consortium', the NF Conference has grown and is now recognized as the largest and the premier annual gathering of international NF researchers and physicians. Two-hundred and eighty NF researchers and clinicians from around the world attended the 2009 NF Conference. A major contributor to this growth has been the significant advances made in NF research in recent years and particularly the advances into clinical trials and drug therapy development. Traditionally a forum for research information exchange and consensus building, in recent years the NF Conference has also become the principal international forum for reporting on the neurofibromatosis preclinical therapeutic pipeline and the now expanding arena of neurofibromatosis clinical trials. The 2010 NF Conference is themed Back to the Future and in structure and layout it returns to a large extent to the workshop-based model from which the Conference originally evolved. The goal of the 2010 NF Conference will be to evaluate how far NF research has come, and what are the major remaining challenges and controversies. This them will be explored in a variety of session models over four days. General sessions will focus on specific topics and themes in NF and review them through presentations from top-level researchers spanning from basic research questions to translational and clinical issues. Panel and Roundtable sessions will take on provocative topics and be driven by discussion and audience participation. Abstract platform and poster sessions are laid out to give ample attention to a broader array of new research particularly to younger investigators. Recognizing the important growing role for this Conference in serving as a forum for the NF clinical community, through the Foundation's NF Clinic Network, there will be a one-day workshop preceding the main Conference session that is targeted at NF clinic coordinators, nurses and genetic counselors. Overall, it is intended that the 2010 NF Conference will bring yet another fresh perspective to the NF community at large, while remaining the premier annual event in the calendar for NF research and clinical care information. PUBLIC HEALTH RELEVANCE: The Children's Tumor Foundation NF Conference has had a fruitful history since its inception in 1985, and it plays a lynchpin role as the premier annual gathering of researchers and clinicians in the neurofibromatosis community. The meeting is a forum for research information exchange and discussion for neurofibromatosis researchers and clinicians from around the world, and has traditionally fostered collaboration, consensus building, and advances in translational research culminating in clinical trials. Meeting attendance has doubled in recent years from 140 attendees in 2005 to 280 attendees in 2009, driven largely by an expanding clinical agenda component as the neurofibromatosis field progresses bench to bedside.
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  • 项目类别:
    省市级项目
  • 资助金额:
    --
  • 批准年份:
    2025
  • 负责人:
  • 依托单位:
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    2025JJ70209
  • 项目类别:
    省市级项目
  • 资助金额:
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  • 批准年份:
    2025
  • 负责人:
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AGE-RAGE通路调控慢性胰腺炎纤维化进程的作用及分子机制
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  • 项目类别:
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  • 资助金额:
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  • 批准年份:
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  • 负责人:
    万荣
  • 依托单位: