Health care networks for children with inherited metabolic diseases: a mixed methods study of family perceptions of relational continuity and care coordination
Health care networks for children with inherited metabolic diseases: a mixed methods study of family perceptions of relational continuity and care coordination
患有遗传性代谢疾病的儿童的医疗保健网络：家庭对关系连续性和护理协调的看法的混合方法研究
批准号：
449403
负责人：
Al-Baldawi Zobaida
金额：
$1.27万
依托单位：
依托单位国家：
加拿大
项目类别：
Studentship Programs
财政年份：
2020
资助国家：
加拿大
项目状态：
已结题
起止时间：
2020-12-01 至 2021-12-01
中文摘要
翻译
背景：为IMD儿童提供高质量的以家庭为中心的护理是一项挑战。为了为制定针对IMD儿童需求的干预措施提供信息，我们首先需要更好地了解当前的卫生保健需求和差距，
英文摘要
Background: Delivery of high-quality family-centred care for children with IMD is challenging. To inform the development of interventions tailored to the needs of children with IMD, we first need to better understand current health care needs and gaps in
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