Designing for Families as Adaptive Systems: Collaborative Emotional Support and Resilience in the Children's Hospital
Designing for Families as Adaptive Systems: Collaborative Emotional Support and Resilience in the Children's Hospital
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为家庭设计自适应系统：儿童医院的协作情感支持和复原力
DOI：
10.1145/3491101.3519787
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发表时间：
2022
期刊：
影响因子：
--
通讯作者：
Miller, Andrew
中科院分区：
文献类型：
--
作者：
Nikkhah, Sarah;Uday Rode, Akash;Kulkarni, Neha;Mittal, Priyanjali;Mueller, Emily;Miller, Andrew
当一个孩子因重病入院时，他们的家人必须适应和管理护理和压力。HCI和计算机支持的协同工作（CSCW）技术已经显示出协作技术支持和增强患者和护理人员之间的护理协作的潜力。然而，很少有人知道的潜力，协作技术，以增加家庭的共同生活圈的经验，压力源和适应的做法，特别是在长期住院期间。在这项工作中，我们采访了14名癌症儿童的父母。我们使用家庭治疗领域的家庭适应性系统框架作为透镜来描述住院儿童家庭的挑战和实践。我们从理论上描述了四个适应系统：情感系统、控制系统、意义系统和维持系统。然后，我们专注于情感系统，建议设计未来的协作技术，以增强协作的活力，提高家庭的韧性的机会。
When a child is admitted to the hospital with a critical illness, their family must adapt and manage care and stress. HCI and Computer-Supported Cooperative Work (CSCW) technologies have shown the potential for collaborative technologies to support and augment care collaboration between patients and caregivers. However, less is known about the potential for collaborative technologies to augment family caregiving circles experiences, stressors, and adaptation practices, especially during long hospitalization stays. We interviewed 14 parents of children with cancer admitted for extended hospitalizations in this work. We use the Family Adaptive Systems framework from the family therapy fields as a lens to characterize the challenges and practices of families with a hospitalized child. We characterize the four adaptive systems from the theory: Emotion system, Control system, Meaning, and Maintenance system. Then, we focus on the Emotion system, suggesting opportunities for designing future collaborative technology to augment collaborative caregiving and enhance family resilience.
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DOI：
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