Measuring retention within the adolescent brain cognitive development (ABCD)(SM) study.

Measuring retention within the adolescent brain cognitive development (ABCD)(SM) study.
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DOI:
10.1016/j.dcn.2022.101081
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发表时间:
2022-04
影响因子:
4.7
通讯作者:
Garavan H
Garavan H
中科院分区:
医学1区
文献类型:
--
作者:
Feldstein Ewing SW;Dash GF;Thompson WK;Reuter C;Diaz VG;Anokhin A;Chang L;Cottler LB;Dowling GJ;LeBlanc K;Zucker RA;Tapert SF;Brown SA;Garavan H

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青少年大脑认知发展(ABCD)SM研究的目的是在其10年的研究过程中,在21个地点保留一个人口统计学上不同的青少年样本和一个父母,同时尽量减少选择性(系统)损耗。为了评估这些努力的有效性,ABCD保留工作组(RW)采用了一种数据驱动的方法,通过三个关键指标来检查、跟踪和干预:(1)哪些年轻人完成访问较晚;(2)哪个青年错过了拜访;(3)哪个青年退出了研究。RW积极检查人口统计(种族、教育水平、家庭收入)和地点因素(访问满意度、距离地点的距离和辅助研究的登记),以制定策略,最大限度地减少参与青年和父母的脱离和损失。数据显示,与迟访最相关的因素是离研究地点的距离、种族和父母的教育水平。种族、较低的父母教育水平、父母的就业状况和较低的家庭收入与较高的失诊几率相关,而参加一项辅助研究与较低的失诊几率相关。此外,以西班牙语为母语的父母退出的比例略高。这些发现为ABCD RW主动保留工作的未来目标提供了见解。三个指标用于跟踪保留率:迟到、错过和退出研究。与研究地点的距离、种族和父母的受教育程度有关。种族、父母的教育程度和父母的职业与失访有关。父母的西班牙语偏好与学习退缩有关。可以进一步努力留住难以接触到的家庭。
The Adolescent Brain Cognitive Development (ABCD)SM study aims to retain a demographically diverse sample of youth and one parent across 21 sites throughout its 10-year protocol while minimizing selective (systematic) attrition. To evaluate the effectiveness of these efforts, the ABCD Retention Workgroup (RW) has employed a data-driven approach to examine, track, and intervene via three key metrics: (1) which youth completed visits late; (2) which youth missed visits; and (3) which youth withdrew from the study. The RW actively examines demographic (race, education level, family income) and site factors (visit satisfaction, distance from site, and enrollment in ancillary studies) to strategize efforts that will minimize disengagement and loss of participating youth and parents. Data showed that the most robust primary correlates of late visits were distance from study site, race, and parental education level. Race, lower parental education level, parental employment status, and lower family income were associated with higher odds of missed visits, while being enrolled in one of the ancillary studies was associated with lower odds of missed visits. Additionally, parents who were primary Spanish speakers withdrew at slightly higher rates. These findings provide insight into future targets for proactive retention efforts by the ABCD RW. Three metrics were used to track retention: late visits, missed visits, and study withdrawal. Distance from study site, race, and parental education level were associated with late visits. Race, parental education and parental employment were associated with missed visits. Parental Spanish language preference was associated with study withdrawal. Further retention efforts can be made to target and retain hard-to-reach families.
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