A pan-European survey of research in end-of-life cancer care.

A pan-European survey of research in end-of-life cancer care.
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DOI:
10.1007/s00520-010-1048-x
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发表时间:
2012-01
影响因子:
3.1
通讯作者:
Kaasa, Stein
Kaasa, Stein
中科院分区:
医学2区
文献类型:
--
作者:
Sigurdardottir, Katrin Ruth;Haugen, Dagny Faksavg;Bausewein, Claudia;Higginson, Irene J.;Harding, Richard;Rosland, Jan Henrik;Kaasa, Stein

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到目前为止,欧洲还没有针对生命末期(EOL)癌症护理研究的协调战略。PRISMA(反映欧洲临终关怀研究和测量优先事项的积极变化)项目旨在制定一个将临终关怀研究和测量相结合的方案。该调查旨在绘制和描述欧洲目前的EOL癌症护理研究,并确定优先事项和障碍。2009年5月,41个欧洲国家的201名研究人员应邀在网上填写了一份有62个问题的问卷。在互联网上张贴了公开邀请参加会议的通知。36个国家的受邀联系人发出了127份答复;另有8份答复是通过网站发出的。共有127份答复符合分析条件。受访者为69名男性和58名女性,平均年龄49(28 - 74)岁; 85%的科学团队领导人是医生。127个研究小组中有71个位于教学医院或癌症中心。45%的小组只有1至5名成员,28%的小组有6至10名成员。92个团体中有63个报告了对EOL护理研究的具体资助。75%的研究组在过去3年中在影响因子≤ 5的期刊上发表过论文; 8%的研究组在影响因子> 10的期刊上发表过论文。90个小组中有44个报告至少有一个完成了博士学位。在过去的三年里最常报告的活跃研究领域是疼痛,评估和测量工具,以及生命的最后几天和死亡质量。非常相似的领域生命的最后几天和死亡质量,疼痛,疲劳和恶病质,以及评估和测量工具被列为最重要的研究重点。最重要的研究障碍是缺乏资金、缺乏时间和知识/专长不足。大多数EOL护理研究小组都很小。少数几个大的群体(14%)拥有几乎一半的报告出版物,超过一半的现有博士学位。学生在终末期癌症护理研究中缺乏共同的战略和协调,非常需要国际合作。本文的在线版本(doi:10.1007/s00520 - 010 - 1048-x)包含补充材料,可供授权用户使用。
To date, there is no coordinated strategy for end-of-life (EOL) cancer care research in Europe. The PRISMA (Reflecting the Positive Diversities of European Priorities for Research and Measurement in End-of-life Care) project is aiming to develop a programme integrating research and measurement in EOL care. This survey aimed to map and describe present EOL cancer care research in Europe and to identify priorities and barriers. A questionnaire of 62 questions was developed and 201 researchers in 41 European countries were invited to complete it online in May 2009. An open invitation to participate was posted on the internet. Invited contacts in 36 countries sent 127 replies; eight additional responses came through websites. A total of 127 responses were eligible for analysis. Respondents were 69 male and 58 female, mean age 49 (28–74) years; 85% of the scientific team leaders were physicians. Seventy-one of 127 research groups were located in a teaching hospital or cancer centre. Forty-five percent of the groups had only one to five members and 28% six to ten members. Sixty-three of 92 groups reported specific funding for EOL care research. Seventy-five percent of the groups had published papers in journals with impact factor ≤5 in the last 3 years; 8% had published in journals with impact factor >10. Forty-four out of 90 groups reported at least one completed Ph.D. in the last 3 years. The most frequently reported active research areas were pain, assessment and measurement tools, and last days of life and quality of death. Very similar areas—last days of life and quality of death, pain, fatigue and cachexia, and assessment and measurement tools—were ranked as the most important research priorities. The most important research barriers were lack of funding, lack of time, and insufficient knowledge/expertise. Most research groups in EOL care are small. The few large groups (14%) had almost half of the reported publications, and more than half of the current Ph.D. students. There is a lack of a common strategy and coordination in EOL cancer care research and a great need for international collaboration. The online version of this article (doi:10.1007/s00520-010-1048-x) contains supplementary material, which is available to authorized users.
DOI: 10.1016/j.ejca.2008.02.024
发表时间: 2008-07-01
影响因子: 8.4
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