Surviving through story: Experiences of people with learning disabilities in the covid19 pandemic 2020-2021.
Surviving through story: Experiences of people with learning disabilities in the covid19 pandemic 2020-2021.
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DOI：
10.1111/bld.12463
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发表时间：
2022-06
影响因子：
1.5
通讯作者：
Tokley, Kate
中科院分区：
文献类型：
--
作者：
Bartlett, Terry;Charlesworth, Pat;Choksi, Ajay;Christian, Paul;Gentry, Susie;Green, Vicky;Grove, Nicola;Hart, Craig;Kwiatkowska, Gosia;Ledger, Sue;Murphy, Sharon;Tilley, Liz;Tokley, Kate
历史从我们现在所在的地方开始--它不仅仅是很久以前发生的事情。全球疫情始于二零一九年。它改变了学习障碍者的生活。我们于2020年4月第一次封锁期间开始我们的项目。我们一起建立了一个网站，收集故事，相互支持和学习如何生存和保持强大。讲故事非常重要，因为它可以帮助我们理解正在发生的事情，也是一种在非常困难的时期捕捉学习障碍者历史的方法。我们知道，成千上万的学习障碍者在1918年的流感流行中生病并死亡。但没有人用自己的话记录他们的故事。我们想确保这种情况不会再次发生，所以我们创建了一个档案来帮助我们记住。该项目由一个由有学习障碍和无学习障碍的人组成的咨询小组管理，他们每月开会监测网站上故事的收集和分析。定期进行现场审计，以确定故事中的主题和提交者。文章描述了项目的进展，我们分享的故事，以及我们面临的挑战。我们讨论了学习障碍者如何在媒体上出现，以及我们对我们没有被听到的方式的看法，或者总是被视为脆弱的受害者。我们发现了许多悲伤的故事，但也有积极的故事，关于人们的创造力和支持。我们展望未来，分享我们对社会如何与众不同和更具包容性的想法。作为这个项目的一部分，让我们有信心知道我们并不孤单，并向我们展示了我们如何帮助恢复。这篇文章是关于2019冠状病毒病大流行期间学习障碍者的生活。这只是刚刚发生，但它将成为下一代的历史，他们将看到它并从中学习。在文章中，我们描述了我们的网站，通过故事生存，是如何建立的。我们分享一些故事，并讨论他们给我们的信息。尼古拉·格罗夫、利兹·蒂利和苏·莱杰撰写了引言和结论，并找到了参考文献。我们讨论了我们之间的内容。个别章节被送到尼古拉联合收割机的文章。尼古拉和帕特·查尔斯沃思撰写了讨论和可访问的摘要。我们是如何写文章的。
History starts from where we are now ‐ it is not just things that happened a long time ago. The global pandemic began in 2019. It has changed the lives of people with learning disabilities. We began our project during the first lockdown in April 2020. We came together to set up a website to collect stories and support and learn from each other about how to survive and keep strong. Storytelling is very important because it helps us understand what is going on. It is also a way to capture the history of people with learning disabilities at a very difficult time. We know that thousands of people with learning disabilities became ill and died in the flu epidemic of 1918. But nobody recorded their stories in their own words. We want to make sure this does not happen again, so we created an archive to help us remember. The project was managed with an advisory group of people with and without learning disabilities who met monthly to monitor the collection and analysis of stories on the site. A site audit was performed regularly to determine the themes in the stories and who had submitted. The article describes the progress of the project, the stories we have shared, and the challenges we have faced. We discuss how people with learning disabilities have been presented in the media and our views about the way we are not heard, or always shown as vulnerable victims. We have found many sad stories, but also positive ones about people being creative and supportive. We look forward to the future and share our ideas about how society could be different and more inclusive. Being part of this project has given us confidence to know we are not alone, and shown us how we can help with the recovery. This article is about the lives of people with learning disabilities during the Covid‐19 pandemic. It has only just happened, but it will be history for the next generation who will look at it and learn from it. In the article, we describe how our site, Surviving through Story, was set up. We share some of the stories and discuss the messages they have for us. Nicola Grove, Liz Tilley and Sue Ledger wrote the introduction and the conclusion and found references. We discussed the content between us. Individual sections were sent to Nicola to combine in the article. Nicola and Pat Charlesworth wrote the discussion and the accessible summary. How we wrote the article.
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