Characteristics of Users of the Cook for Your Life Website, an Online Nutrition Resource for Persons Affected by Cancer: Descriptive Study.
Characteristics of Users of the Cook for Your Life Website, an Online Nutrition Resource for Persons Affected by Cancer: Descriptive Study.
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DOI：
10.2196/37212
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发表时间：
2022-07-05
期刊：
影响因子：
2.8
通讯作者：
Greenlee, Heather
中科院分区：
文献类型：
--
作者：
Rillamas-Sun, Eileen;Schattenkerk, Liza;Cobos, Sofia;Ueland, Katherine;Gaffney, Ann Ogden;Greenlee, Heather
针对癌症患者、癌症幸存者的照顾者以及对癌症预防感兴趣的人群的可获取的营养资源是有限的。“为你的生活烹饪”是一个双语（即英语和西班牙语）网站，为受癌症影响的人群提供基于科学的营养信息。
本研究的目的是描述“为你的生活烹饪”网站用户的特征。
2020年12月，邀请该网站至少18岁的访问者参加一项在线英语调查。2021年4月提供了西班牙语版本。收集了人口统计学、健康和烹饪方面的特征。有癌症病史的人被问及治疗和副作用情况。对在2021年12月前完成超过一半调查的人员的数据进行了分析。对三组人员进行了比较：有癌症诊断病史的人、癌症幸存者的照顾者以及普通公众（即无癌症病史的人）。还对网站使用数据进行了比较。
在英语受访者中，3346人开始了调查，2665人（79.65%）完成了超过一半的问题。其中，54.82%（n = 1461）有癌症诊断，8.26%（n = 220）是照顾者，36.92%（n = 984）来自普通公众。英语受访者是美国居民（n = 2054，77.07%），一些来自欧洲（n = 285，10.69%）和加拿大（n = 170，6.38%）。癌症幸存者最有可能是55岁及以上、女性、非西班牙裔白人、收入超过10万美元且受过大学教育。照顾者和普通公众更年轻，在种族和地域上更多样化。英语癌症幸存者中最常见的癌症恶性肿瘤是乳腺癌（629/1394，45.12%）和胃肠道癌（209/1394，14.99%）。对于西班牙语受访者，942人开始了调查；其中，681人（72.3%）被分析。在分析的681人中，13.5%（n = 92）是癌症幸存者，6.8%（n = 46）是照顾者，79.7%（n = 543）来自普通公众。西班牙语受访者也更有可能是女性且受过高等教育，但更年轻，来自南美洲或拉丁美洲，收入低于3万美元。在西班牙语癌症幸存者中，乳腺癌（27/81，33%）和胃肠道癌（15/81，19%）是最常见的诊断。2020年12月至2021年12月超过220万用户的网站使用数据显示，52.29%的流量是英语，43.44%是西班牙语。与调查受访者相比，网站用户中男性比例更高、更年轻，且来自南美洲或中美洲以及欧洲的比例更高。
“为你的生活烹饪”网站用户在人口统计学、社会经济和地域方面是多样的，尤其是无癌症病史的英语受访者和所有西班牙语受访者。将继续改善网站用户的多样性和覆盖所有癌症患者，并研究使用这一数字平台支持癌症预防、治疗和生存的有效策略。
ClinicalTrials.gov NCT04200482；https://www.clinicaltrials.gov/ct2/show/NCT04200482
Accessible nutrition resources tailored to patients with cancer, caregivers of cancer survivors, and people interested in cancer prevention are limited. Cook for Your Life is a bilingual (ie, English and Spanish) website providing science-based, nutrition information for people affected by cancer. The aim of this study was to describe the characteristics of Cook for Your Life website users. In December 2020, Cook for Your Life website visitors at least 18 years old were invited to participate in an online English-language survey. A Spanish version was offered in April 2021. Demographic, health, and cooking characteristics were collected. Persons with a cancer history were asked about treatment and side effects. Data were analyzed through December 2021 on those completing over half of the survey. Three groups were compared: people with a history of cancer diagnosis, caregivers of cancer survivors, and the general public (ie, people without a cancer history). Website use data were also compared. Among English-language respondents, 3346 initiated the survey and 2665 (79.65%) completed over half of the questions. Of these, 54.82% (n=1461) had a cancer diagnosis, 8.26% (n=220) were caregivers, and 36.92% (n=984) were from the general public. English-language respondents were US residents (n=2054, 77.07%), with some from Europe (n=285, 10.69%) and Canada (n=170, 6.38%). Cancer survivors were most likely 55 years of age or older, female, non-Hispanic White, with incomes over US $100,000, and college educated. Caregivers and the general public were younger and more racially and geographically diverse. The most common cancer malignancies among English-language cancer survivors were breast (629/1394, 45.12%) and gastrointestinal (209/1394, 14.99%). For Spanish-language respondents, 942 initiated the survey; of these, 681 (72.3%) were analyzed. Of the 681 analyzed, 13.5% (n=92) were cancer survivors, 6.8% (n=46) were caregivers, and 79.7% (n=543) were from the general public. Spanish-language respondents were also more likely to be female and highly educated, but were younger, were from South or Latin America, and had incomes less than US $30,000. Among Spanish-language cancer survivors, breast cancer (27/81, 33%) and gastrointestinal cancer (15/81, 19%) were the most common diagnoses. Website use data on over 2.2 million users from December 2020 to December 2021 showed that 52.29% of traffic was in English and 43.44% was in Spanish. Compared to survey respondents, a higher proportion of website users were male, younger, and from South or Central America and Europe. Cook for Your Life website users were demographically, socioeconomically, and geographically diverse, especially English-language respondents without a cancer history and all Spanish-language respondents. Improvements on website user diversity and reach for all patients with cancer and research on effective strategies for using this digital platform to support cancer prevention, treatment, and survivorship will continue. ClinicalTrials.gov NCT04200482; https://www.clinicaltrials.gov/ct2/show/NCT04200482
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