Relationship of external influence to parental distress in decision making regarding children with a life-threatening illness.

Relationship of external influence to parental distress in decision making regarding children with a life-threatening illness.
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在对患有危及生命的疾病的儿童做出决策时,外部影响与父母痛苦的关系。

DOI:
10.1093/jpepsy/jsr033
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发表时间:
2011
影响因子:
3.6
通讯作者:
Nelson,RobertM
Nelson,RobertM
中科院分区:
心理学3区
文献类型:
--
作者:
Miller,VictoriaA;Luce,MaryFrances;Nelson,RobertM

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目的探讨在决定是否为患有严重疾病的儿童进行研究或治疗时,外部影响与父母痛苦的关系,并测试这种关系的潜在调节因素。方法219名决定为孩子进行研究或治疗的家长填写了外部影响、困扰、决策偏好和应对措施。结果更多的外部影响与更多的敌意、不确定性和困惑有关。决策偏好和应对方式调节了外部影响与痛苦的关系:当决策偏好低、任务关注型应对高时,外部影响越大,痛苦越大。结论外部影响可能与父母在对儿童重大疾病进行研究和治疗决策时的困扰有关。然而,在检查环境因素对决策过程中痛苦的影响时,考虑父母的特征,如决策偏好和应对方式是很重要的。
ObjectiveTo examine the relationship of external influence to parental distress when making a decision about research or treatment for a child with a life-threatening illness and to test potential moderators of this relationship.MethodsParents (n= 219) who made a decision about research or treatment for a child completed measures of external influence, distress, decision-making preference, and coping.ResultsMore external influence was associated with more hostility, uncertainty, and confusion. Decision-making preference and coping style moderated the relationship between external influence and distress: More external influence was associated with more distress when decision-making preference was low and task-focused coping was high.ConclusionsExternal influence appears to be related to distress in parents making research and treatment decisions for children with life-threatening illnesses. However, it is important to consider parent characteristics, such as decision-making preference and coping style, when examining the effects of contextual factors on distress during decision making.
《生物医学伦理学原理》,第五版,T. L. Beauchamp 和 J. F. Childress,纽约:牛津大学出版社,2001 年。xiv+454 页,价格 19.95 英镑。
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