"It was almost like it's set up for people to fail" A qualitative analysis of experiences and unmet supportive needs of people with Long COVID.
"It was almost like it's set up for people to fail" A qualitative analysis of experiences and unmet supportive needs of people with Long COVID.
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DOI：
10.1186/s12889-023-17033-4
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发表时间：
2023-10-31
影响因子：
4.5
通讯作者：
中科院分区：
文献类型：
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作者：
近20%的成年COVID-19患者会发展为长期COVID，导致长期症状和残疾。了解长期COVID患者的支持需求对于制定有效的护理和政策模式至关重要。这项定性子研究探讨了长期COVID患者的经历及其未满足的需求。参与者参加了一项更大规模的研究，以评估COVID-19对急性心血管的影响，并被邀请参加随后的深入访谈。有目的地招募参与者，直到24名参与者饱和。使用主题内容分析法对数据进行分析。与会者重点讨论了如何适应长期的新冠肺炎生活，以及他们在不同生活领域未得到满足的需求。三个领域，1）职业和财务; 2）医疗保健相关;和3）社会和情感支持，成为影响生活质量的领域。尽管参与者出于经济和个人原因有重返工作岗位的动机，但长期的COVID症状往往导致他们无法完成现有工作所需的任务，并导致失业。那些通过雇主提供的便利条件维持就业的人仍然需要额外的支助。参与者遇到了诊断方面的挑战、获得专科预约的挑战、保险漏洞、高昂的医疗费用和医疗怀疑。现有的社交网络为完成日常任务提供了支持;然而，长期COVID患者通常会向有类似生活经历的其他人寻求情感支持。与会者发现，政府的支助方案在所有三个领域都不充分，而且难以获得。我们提出五管齐下的政策方针，以支援长期受新型冠状病毒感染的人士。这些总体建议是（1）提高公众对长期COVID的认识;（2）提高临床护理质量和可及性;（3）实施额外的学校和工作场所设施;（4）加强社会经济效益和社会服务;以及（5）改善对长期COVID的研究。在线版本包含补充材料，可通过10.1186/s12889-023-17033-4获得。
Almost twenty percent of adults with COVID-19 develop Long COVID, leading to prolonged symptoms and disability. Understanding the supportive needs of people with Long COVID is vital to enacting effective models of care and policies. This qualitative sub-study explored the experiences of people with Long COVID and their unmet needs. Participants enrolled in a larger study to evaluate the post-acute cardiovascular impacts of COVID-19 were invited to participate in subsequent in-depth interviews. Participants were enrolled purposively until saturation at 24 participants. Data were analyzed using thematic content analysis. Participants focused on adaptations to life with Long COVID and their unmet needs in different life spheres. Three domains, 1) occupational and financial; 2) healthcare-related; and 3) social and emotional support, emerged as areas affecting quality of life. Although participants were motivated to return to work for financial and personal reasons, Long COVID symptoms often resulted in the inability to perform tasks required by their existing jobs, and unemployment. Those who maintained employment through employer accommodations still needed additional support. Participants encountered diagnostic challenges, challenges in accessing specialty appointments, insurance loopholes, high healthcare costs, and medical skepticism. Existing social networks provided support for completing daily tasks; however, those with Long COVID typically turned to others with similar lived experiences for emotional support. Participants found government support programs inadequate and difficult to access in all three domains. We propose a five-pronged policy approach to support persons with Long COVID. These overarching recommendations are (1) improve public awareness of Long COVID; (2) improve clinical care quality and access; (3) implement additional school and workplace accommodations; (4) strengthen socioeconomic benefits and social services; and (5) improve research on Long COVID. The online version contains supplementary material available at 10.1186/s12889-023-17033-4.
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影响因子：
4.6
作者：
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DOI：
10.1016/j.lanwpc.2021.100193
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影响因子：
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