A patient survey of the impact of fibromyalgia and the journey to diagnosis.
A patient survey of the impact of fibromyalgia and the journey to diagnosis.
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DOI：
10.1186/1472-6963-10-102
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发表时间：
2010-04-26
影响因子：
2.8
通讯作者：
Kramer E
中科院分区：
文献类型：
--
作者：
Choy E;Perrot S;Leon T;Kaplan J;Petersel D;Ginovker A;Kramer E
纤维肌痛是一种痛苦的、令人衰弱的疾病，患病率为0.5%-5.0%，女性的影响比男性更大。已经证明，纤维肌痛的诊断与患者满意度的提高和医疗保健利用率的降低有关。这项调查考察了患者诊断病情的过程，并研究了病情对他们生活的影响。对欧洲6个国家、墨西哥和韩国的800名纤维肌痛患者和1622名医生进行了问卷调查。患者是通过他们的医生招募的。超过一半的患者(61%)年龄在36-59岁之间，84%是女性，自出现纤维肌痛症状以来的平均时间为6.5年。患者经历了多种纤维肌痛症状(平均7.3分，满分14分)，其中疼痛、疲劳、睡眠问题和注意力集中困难是最常见的报告。大多数患者将他们的慢性广泛性疼痛评为中度或重度，纤维肌痛的症状平均来说是“相当”到“非常”破坏性的，对患者的生活有“中等”到“强烈”的影响。22%的人无法工作，25%的人因为纤维肌痛而无法一直工作。患者平均在出现症状后等待近一年才向医生提出诊断，平均需要2.3年，向3.7名不同的医生提出，才能得到纤维肌痛的诊断。平均而言，被评为接受诊断有些困难的患者，在与医生沟通他们的症状方面存在困难。超过三分之一(35%)的人认为他们目前的治疗无法很好地控制他们的慢性广泛性疼痛。这项调查提供了进一步的证据，表明纤维肌痛以多种症状为特征，并对生活质量和功能有显著影响。纤维肌痛的诊断被推迟了。患者在就诊前要等待相当长的一段时间，这增加了诊断的时间。患者通常会出现多种症状，所有这些都会导致诊断和最终处理的延误。帮助临床医生诊断和管理纤维肌痛患者应该使患者和医疗保健资助者都受益。
Fibromyalgia is a painful, debilitating illness with a prevalence of 0.5-5.0% that affects women more than men. It has been shown that the diagnosis of fibromyalgia is associated with improved patient satisfaction and reduced healthcare utilization. This survey examined the patient journey to having their condition diagnosed and studied the impact of the condition on their life. A questionnaire survey of 800 patients with fibromyalgia and 1622 physicians in 6 European countries, Mexico and South Korea. Patients were recruited via their physician. Over half the patients (61%) were aged 36-59 years, 84% were women, and the mean time since experiencing fibromyalgia symptoms was 6.5 years. Patients had experienced multiple fibromyalgia symptoms (mean of 7.3 out of 14), with pain, fatigue, sleeping problems and concentration difficulties being the most commonly reported. Most patients rated their chronic widespread pain as moderate or severe and fibromyalgia symptoms were on average "fairly" to "very" disruptive, and had a "moderate" to "strong" impact on patients' lives. 22% were unable to work and 25% were not able to work all the time because of their fibromyalgia. Patients waited on average almost a year after experiencing symptoms before presenting to a physician, and it took an average of 2.3 years and presenting to 3.7 different physicians before receiving a diagnosis of fibromyalgia. Patients rated receiving a diagnosis as somewhat difficult on average and had difficulties communicating their symptoms to the physician. Over one third (35%) felt their chronic widespread pain was not well managed by their current treatment. This survey provides further evidence that fibromyalgia is characterized by multiple symptoms and has a notable impact on quality of life and function. The diagnosis of fibromyalgia is delayed. Patients wait a significant period of time before presenting to a physician, adding to the prolonged time to diagnosis. Patients typically present with a multitude of symptoms, all resulting in a delay in diagnosis and eventual management. Helping clinicians to diagnose and manage patients with fibromyalgia should benefit both patients and funders of healthcare.
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DOI：
10.1097/spc.0b013e3283005479
发表时间：
2008-06-01
影响因子：
2.1
作者：
Perrot, Serge
通讯作者：
Perrot, Serge
影响因子：
2.3
作者：
Bennett, Robert M.;Jones, Jessie;Matallana, Lynne
通讯作者：
Matallana, Lynne
影响因子：
3.5
作者：
Arnold, Lesley M.;Crofford, Leslie J.;Mease, Philip J.;Burgess, Somali Misra;Palmer, Susan C.;Abetz, Linda;Martin, Susan A.
通讯作者：
Martin, Susan A.
影响因子：
--
作者：
Hughes, G;Martinez, C;Wessely, S
通讯作者：
Wessely, S
影响因子：
3.7
作者：
White, K P;Harth, M
通讯作者：
Harth, M