Patient perspectives on the impact of fibromyalgia.
Patient perspectives on the impact of fibromyalgia.
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DOI：
10.1016/j.pec.2008.06.005
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发表时间：
2008-10
影响因子：
3.5
通讯作者：
Martin, Susan A.
中科院分区：
文献类型：
--
作者：
Arnold, Lesley M.;Crofford, Leslie J.;Mease, Philip J.;Burgess, Somali Misra;Palmer, Susan C.;Abetz, Linda;Martin, Susan A.
本研究的目的是从患者的角度引出并评估重要的症状领域以及纤维肌痛对患者生活质量和功能的影响。目的是收集这些信息，作为克服纤维肌痛现有结果测量的缺点的整体努力的一部分。这是一项定性研究，其中对 48 名被诊断患有纤维肌痛的女性进行了六次焦点小组会议，以得出评估纤维肌痛对其生活影响的概念和想法。对纤维肌痛患者进行的焦点小组确定了对其生活质量影响最大的症状领域，包括疼痛、睡眠障碍、疲劳抑郁、焦虑和认知障碍。纤维肌痛对社会和职业功能有很大的负面影响。患者报告与家人和朋友的关系中断、社会孤立、日常生活和休闲活动减少、避免体力活动、以及失去职业或无法在职业或教育方面取得进步。焦点小组的研究结果表明，纤维肌痛对患者的生活有很大的负面影响。对与纤维肌痛相关的多种症状领域以及纤维肌痛对功能多维方面的影响进行全面评估应该成为纤维肌痛患者护理的常规部分。
The objective of this study was to elicit and assess important symptom domains and the impact of fibromyalgia on patients’ quality of life and functioning from a patient’s perspective. The intention was to collect this information as part of an overall effort to overcome shortcomings of existing outcome measures in fibromyalgia. This was a qualitative study in which six focus group sessions with 48 women diagnosed with fibromyalgia were conducted to elicit concepts and ideas to assess the impact of fibromyalgia on their lives. The focus groups conducted with fibromyalgia patients identified symptom domains that had the greatest impact on their quality of life including pain, sleep disturbance, fatigue depression, anxiety, and cognitive impairment. Fibromyalgia had a substantial negative impact on social and occupational function. Patients reported disrupted relationships with family and friends, social isolation, reduced activities of daily living and leisure activities, avoidance of physical activity, and loss of career or inability to advance in careers or education. The findings from the focus groups revealed that fibromyalgia has a substantial negative impact on patients’ lives. A comprehensive assessment of the multiple symptoms domains associated with fibromyalgia and the impact of fibromyalgia on multidimensional aspects of function should be a routine part of the care of fibromyalgia patients.
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影响因子：
3.5
作者：
Haugli, L;Strand, E;Finset, A
通讯作者：
Finset, A
影响因子：
1.9
作者：
Hallberg, LRM;Carlsson, SG
通讯作者：
Carlsson, SG
影响因子：
5
作者：
Staud, Roland
通讯作者：
Staud, Roland
DOI：
10.1111/j.1471-6712.2000.tb00558.x
发表时间：
2000-01-01
影响因子：
1.9
作者：
Hallberg, LRM;Carlsson, SG
通讯作者：
Carlsson, SG
影响因子：
3.7
作者：
White, K P;Harth, M
通讯作者：
Harth, M