Patients' Perspectives on Qualitative Olfactory Dysfunction: Thematic Analysis of Social Media Posts.
Patients' Perspectives on Qualitative Olfactory Dysfunction: Thematic Analysis of Social Media Posts.
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DOI：
10.2196/29086
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发表时间：
2021-12-14
影响因子：
2.2
通讯作者：
Gane S
中科院分区：
文献类型：
--
作者：
Parker JK;Kelly CE;Smith BC;Kirkwood AF;Hopkins C;Gane S
质的嗅觉障碍的影响被低估了。感染后的嗅觉丧失会导致嗅觉异常，即对熟悉气味的扭曲感觉，以及在没有刺激的情况下感受到气味的幻觉，自新冠肺炎爆发以来，这两种疾病的发生率都大幅增加。这项研究的目的是使用社交媒体上的非结构化和主动提供的帖子来探索感染后嗅觉障碍综合征的症状和后遗症，并阐明受这些令人衰弱的嗅觉障碍影响的患者的观点和关切。在2020年6月至12月期间，对Facebook上的脓肿、畸形症和幻影症支助小组的帖子进行了主题分析和内容分析。在这篇文章中，我们识别了一种新的症状，嗅觉坚持，这是一种触发的，可识别的，通常令人不快的嗅觉，在没有持续刺激的情况下持续存在。我们还观察了副嗅觉、幻觉和嗅觉顽固症状的强度和持续时间的波动。此外，我们找出了一组最常见的东西(咖啡、肉、洋葱和牙膏)，它们会引发扭曲；然而，人们很难用与厌恶和厌恶相关的词语来描述这些扭曲。质性嗅觉障碍患者的情感方面是显而易见的，并突出了对心理健康的有害影响。从社交媒体获得的定性和未经请求的数据为患者的副精子症和幽灵症经验提供了有用的见解，这些数据可以为康复战略和正在进行的研究提供信息，以了解与寄生虫扭曲相关的分子触发因素，并研究患者的利益。
The impact of qualitative olfactory disorders is underestimated. Parosmia, the distorted perception of familiar odors, and phantosmia, the experience of odors in the absence of a stimulus, can arise following postinfectious anosmia, and the incidences of both have increased substantially since the outbreak of COVID-19. The aims of this study are to explore the symptoms and sequalae of postinfectious olfactory dysfunction syndrome using unstructured and unsolicited threads from social media, and to articulate the perspectives and concerns of patients affected by these debilitating olfactory disorders. A thematic analysis and content analysis of posts in the AbScent Parosmia and Phantosmia Support group on Facebook was conducted between June and December 2020. In this paper, we identify a novel symptom, olfactory perseveration, which is a triggered, identifiable, and usually unpleasant olfactory percept that persists in the absence of an ongoing stimulus. We also observe fluctuations in the intensity and duration of symptoms of parosmia, phantosmia, and olfactory perseveration. In addition, we identify a group of the most common items (coffee, meat, onion, and toothpaste) that trigger distortions; however, people have difficulty describing these distortions, using words associated with disgust and revulsion. The emotional aspect of living with qualitative olfactory dysfunction was evident and highlighted the detrimental impact on mental health. Qualitative and unsolicited data acquired from social media has provided useful insights into the patient experience of parosmia and phantosmia, which can inform rehabilitation strategies and ongoing research into understanding the molecular triggers associated with parosmic distortions and research into patient benefit.
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影响因子：
7.2
作者：
Hopkins, Claire;Surda, Pavol;Kumar, Nirmal
通讯作者：
Kumar, Nirmal
影响因子：
3.8
作者：
El Haj, Mohamad;Laroi, Frank
通讯作者：
Laroi, Frank
DOI：
10.1186/1472-6815-13-8
发表时间：
2013-07-23
期刊：
BMC EAR NOSE AND THROAT DISORDERS
影响因子：
--
作者：
Keller, Andreas;Malaspina, Dolores
通讯作者：
Malaspina, Dolores
影响因子：
2.6
作者：
Reden, J.;Maroldt, H.;Hummel, T.
通讯作者：
Hummel, T.
影响因子：
3.7
作者：
Burges Watson DL;Campbell M;Hopkins C;Smith B;Kelly C;Deary V
通讯作者：
Deary V