Measuring Awareness in People With Dementia: Results of a Systematic Scoping Review.
Measuring Awareness in People With Dementia: Results of a Systematic Scoping Review.
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DOI：
10.1177/0891988720924717
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发表时间：
2021-09
影响因子：
2.6
通讯作者：
Clare L
中科院分区：
文献类型：
--
作者：
Alexander CM;Martyr A;Savage SA;Morris RG;Clare L
痴呆症（PwD）患者对诊断或相关功能变化的认识各不相同，这对PwD及其护理人员的福祉有影响。在临床环境中测量意识可以促进量身定制的支持，并优化个人健康和护理决策的参与。本范围审查旨在确定评估痴呆症意识的有效方法，并评估其临床实用性。在6个电子数据库中，对测量PwD意识的英语出版物进行了系统检索。检索词包括痴呆 *、阿尔茨海默病 *、皮克病和意识、无意识、病感失认症、洞察力、否认、元认知 * 或差异 *。我们筛选了30，634篇文章，发现345篇文章符合我们的纳入标准。我们确定了76项措施，最常见的是使用差异问卷比较PwD和线人的功能评价。有30个意识的措施，开发和验证用于痴呆症人群，但很少设计用于一般临床使用。虽然我们发现了一系列用于测量意识的临床适应症，但很少有研究调查临床应用，也很少有为临床目的设计的工具。以人为本的工具的进一步调查和开发可以促进轻度至中度痴呆症的健康和护理选择。
Awareness of the diagnosis or related changes in functioning varies in people with dementia (PwD), with implications for the well-being of PwD and their carers. Measuring awareness in a clinical setting could facilitate tailored support and optimize involvement in personal health and care decisions. This scoping review aimed to identify validated methods of assessing awareness in dementia and appraise their clinical utility. A systematic search was conducted of English-language publications that measured awareness in PwD, in 6 electronic databases. Search terms included dement*, Alzheimer*, Pick disease, and awareness, unawareness, anosognosia, insight, denial, metacognit*, or discrepanc*. We screened 30,634 articles, finding 345 articles that met our inclusion criteria. We identified 76 measures, most commonly using a discrepancy questionnaire comparing evaluations of function by PwD and an informant. There were 30 awareness measures developed and validated for use in dementia populations but few designed for general clinical use. Although we found a range of clinical indications for measuring awareness, there were few studies investigating clinical applications and few tools designed for clinical purposes. Further investigation and development of a person-centered tool could facilitate health and care choices in mild-to-moderate dementia.
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通讯作者：
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